Measuring quality of life in Dutch people with aphasia: development and psychometric evaluation of the SAQOL-39NL

van Ewijk, L., Versteegde, L., Raven-Takken, E. & Hilari, K. (2016). Measuring quality of life in Dutch people with aphasia: development and psychometric evaluation of the SAQOL-39NL. Aphasiology, doi: 10.1080/02687038.2016.1168919

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Abstract

Background: Cross-cultural adaptation of health-related quality of life (HRQL) scales is useful as it allows comparisons of therapy outcomes across different countries to be drawn.

Aims: To adapt the English Stroke and Aphasia Quality of Life—39 item generic stroke scale (SAQOL-39g) into Dutch. To investigate the psychometric properties (acceptability, internal consistency, test–retest reliability and construct validity) of the Dutch version (SAQOL-39NL).

Methods & Procedures: Established guidelines for cross-cultural adaptation of self-report measures were followed. Individuals with chronic aphasia were recruited from six centres in The Netherlands. Participants completed the SAQOL-39NL and a visual analogue scale on HRQL in an interview format with an aphasia specialist speech and language therapist.

Outcomes & Results: The cross cultural adaptation resulted in a consensus version of the SAQOL-39NL, which participants (n = 13) felt was informative and of value in assessing the impact of stroke on their lives. The SAQOL-39NL was acceptable (no missing data; no floor or ceiling effects) to people with chronic aphasia (n = 47). Internal consistency (Cronbach’s alpha = 0.89 for scale; 0.84–0.91 for domains) and test–retest reliability were excellent (ICC = 0.90 for scale, 0.70–0.93 for domains). Internal validity (moderate intercorrelations between domains) and convergent validity (r = 0.45) were good.

Conclusions: The SAQOL-39NL is a psychometrically sound measure of HRQL for Dutch speaking people with aphasia. As is common with new measures, its psychometric properties need to be evaluated further; and its appropriateness as a clinical outcome measure needs to be determined. Yet, the SAQOL-39NL is a promising new measure for use in clinical practice, audit and research.

Item Type: Article
Additional Information: This is an Accepted Manuscript of an article published by Taylor & Francis in Aphasiology and available online at http://dx.doi.org/10.1080/02687038.2016.1168919
Uncontrolled Keywords: Quality of life, SAQOL-39, outcome measures
Subjects: P Language and Literature > P Philology. Linguistics
Divisions: School of Health Sciences > Department of Language & Communication Science
URI: http://openaccess.city.ac.uk/id/eprint/14924

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