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Self-management for people with poorly controlled epilepsy: Participants' views of the UK Self-Management in epILEpsy (SMILE) program

Laybourne, A. H., Morgan, M. J., Watkins, S. H. , Lawton, R., Ridsdale, L. & Goldstein, L. H. (2015). Self-management for people with poorly controlled epilepsy: Participants' views of the UK Self-Management in epILEpsy (SMILE) program. Epilepsy and Behavior, 52(A), pp. 159-164. doi: 10.1016/j.yebeh.2015.08.023


Background: Epilepsy is a long-term condition that requires self-management, but currently, there is no well-evaluated epilepsy self-education or self-management intervention in the United Kingdom (UK).

Aim: The aim of this study was to examine the views and experiences of the first participants of the Self-Management in epILEpsy UK (SMILE UK) program to assist the development of a full trial.

Method: In-depth semistructured interviews and group discussions were conducted with 10 people with poorly controlled epilepsy to explore their views and experiences of the self-management program. Interviews were audio-recorded, transcribed, and analyzed thematically.

Results: All participants viewed the program positively. Three themes emerged: i) peer support was experienced through knowledge sharing, disclosure of experiences, and exchange of contact details; ii) participants felt better equipped to enter discussions with doctors and other health-care professionals about their condition; and iii) participants reported an improvement in their personal life through increased confidence to live with epilepsy and acceptance of their diagnosis.

Conclusion: A brief group self-management intervention increased knowledge and confidence in managing epilepsy.

Publication Type: Article
Additional Information: © 2015, Elsevier. Licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International
Publisher Keywords: Epilepsy, Self-management, Long-term conditions, MOSES
Subjects: R Medicine > RC Internal medicine
Departments: School of Health & Psychological Sciences > Nursing
Text - Accepted Version
Available under License : See the attached licence file.

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