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Research protocol: investigating the feasibility of a group self-management intervention for stroke (the GUSTO study)

Clark, E ORCID: 0000-0001-7436-1114, Ward, N. S., Baio, G. & Jones, F. (2018). Research protocol: investigating the feasibility of a group self-management intervention for stroke (the GUSTO study). Pilot and Feasability Studies, 4, doi: 10.1186/s40814-017-0220-1


Background: Life after stroke can be an ongoing struggle with over half of all survivors reporting unmet emotional and social needs. In the United Kingdom's (UK) national clinical guidelines for stroke, self-management is suggested as one approach which can support long-term needs. In the UK NHS, self-management interventions are delivered in various ways. Regardless of the delivery mechanism, a tailored approach and ways to integrate peer support are advocated. Group delivery offers a platform for peer support and has the potential to remain individualised. However, before the efficacy of a group self-management intervention can be tested, the feasibility must be explored. This research investigates the feasibility of a GroUp Self-management intervention for sTrOke (GUSTO). Methods: A randomised waitlist control design will be used to investigate the feasibility of a group self-management intervention adapted from an existing one-to-one intervention called Bridges. A mixed methods approach will be used. Qualitative work will capture participant experience, while quantitative work will allow preliminary comparison between the intervention and waitlist groups (between subjects) and pre-post intervention measures (within subjects). Interviews will be conducted with stroke survivors and focus groups with family and friends to assess acceptability of the intervention. Discussion: There is a growing interest in group-based self-management interventions for stroke as a method of supporting stroke survivors' ongoing unmet needs. This is an area with limited research to date. This study will inform design of a fully powered trial which would assess the efficacy of a group self-management intervention following stroke. Trial registration: ISRCTN19867168.

Publication Type: Article
Additional Information: © The Author(s). 2018 Open Access. This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (, which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver ( applies to the data made available in this article, unless otherwise stated
Publisher Keywords: Feasibility; Group programmes; Long-term conditions; Rehabilitation; Self-efficacy; Self-management; Stroke
Subjects: R Medicine > R Medicine (General)
Departments: School of Health & Psychological Sciences > School of Health & Psychological Sciences Doctoral Theses
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