City Research Online

Interventions to promote patients and families' involvement in adult intensive care settings: a protocol for a mixed-method systematic review.

Xyrichis, A., Fletcher, S., Brearley, S., Philippou, J., Purssell, E. ORCID: 0000-0003-3748-0864, Terblanche, M., Rafferty, A. M. and Reeves, S. (2019). Interventions to promote patients and families' involvement in adult intensive care settings: a protocol for a mixed-method systematic review.. Systematic Reviews, 8(1), 185.. doi: 10.1186/s13643-019-1102-9


BACKGROUND: There has been an identified need for greater patient and family member involvement in healthcare. This is particularly relevant in an intensive care unit (ICU), as the family provides a key communicative and practical link between patient and clinician. Family members have been deemed a positive beneficial influence on ICU care and recovery processes, yet they themselves are often emotionally affected after discharge. There has been no standardised evidenced-based approach which explores research on family member involvement and the range and quality of contributions remain unclear. This project will undertake a systematic review to assess the evidence base for interventions designed to promote patient and family member involvement in adult intensive care settings and develop a comprehensive typology of interventions for use by clinicians, patients and carers. METHODS: The following databases will be searched without date restriction: MEDLINE, EMBASE and CINAHL, as well as the Cochrane Central Register of Controlled Trials, Joanna Briggs and Cochrane Libraries. Manual searches of recent back issues of leading ICU and patient experience journals will also be undertaken, as will the reference lists of included studies. Unpublished literature will be sought through grey literature databases, including GreyLit and OpenGrey. All evaluation studies that consider intervention activities to promote patient and family member involvement in adult ICUs will be included; all research designs will be eligible. We will seek to include studies that report on a mixture of relevant outcomes for patients and family members. Abstracts and papers will be independently screened by at least two members of the team to determine their inclusion. Included papers will be assessed for methodological rigour using a standard rating approach, which assesses 'quality of study' and 'quality of information'. Quality assessment will be completed by at least two members of the team. Data on interventions, evaluation methods and outcomes will be collated using a predetermined extraction table. These are likely to be heterogeneous in nature, which will mean that the review will follow a narrative approach to synthesis. DISCUSSION: The review will provide valuable and rigorous insight into the range and quality of interventions available to promote patient and family member involvement in ICU. This is the first step towards addressing the absence of a synthesis of research for this context, and will, in addition, develop a typology of available interventions that will help service users and clinicians make informed decisions about the approaches to patient and family member involvement which they might want to adopt. SYSTEMATIC REVIEW REGISTRATION: PROSPERO (CRD42018086325).

Publication Type: Article
Additional Information: © The Author(s). 2019Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0International License (, which permits unrestricted use, distribution, andreproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link tothe Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver( applies to the data made available in this article, unless otherwise stated.
Publisher Keywords: Family member involvement; Intensive care; Systematic review; Typology
Subjects: R Medicine > RT Nursing
Departments: School of Health Sciences > Nursing
Date available in CRO: 04 Sep 2019 14:35
Date deposited: 4 September 2019
Date of acceptance: 10 July 2019
Date of first online publication: 25 July 2019
Text - Published Version
Available under License Creative Commons Attribution.

Download (586kB) | Preview



Downloads per month over past year

View more statistics

Actions (login required)

Admin Login Admin Login