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Systematic Review of the Relationship Between Autism Stigma and Informal Caregiver Mental Health

Papadopoulos, C., Lodder, A., Constantinou, G. ORCID: 0000-0002-2389-7901 and Randhawa, G. (2019). Systematic Review of the Relationship Between Autism Stigma and Informal Caregiver Mental Health. Journal of Autism and Developmental Disorders, 49(4), pp. 1665-1685. doi: 10.1007/s10803-018-3835-z

Abstract

Families play a crucial role in determining the mental health of the autistic individual(s) they are caring for. However, the stigma associated with autism can impair caregiver health. To investigate this, empirical evidence pertaining to stigma’s impact on informal caregivers’ mental health was systematically reviewed. All twelve included studies (n = 1442 informal caregivers) consistently reported the impact of autism related stigma upon caregiver mental health to be significant, meaningful and complex. A new theoretical framework describing the relationship between stigma and caregiver mental health is constructed. Moderating variables include those both changeable through intervention (e.g. hopelessness, self-esteem, self-compassion) and not changeable (gender, culture, financial burden and time since diagnosis). Implications and recommendations for professionals, interventions and future research are proposed.

Publication Type: Article
Additional Information: Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.
Subjects: R Medicine > RC Internal medicine
R Medicine > RC Internal medicine > RC0321 Neuroscience. Biological psychiatry. Neuropsychiatry
R Medicine > RT Nursing
Departments: School of Health Sciences > Midwifery & Radiography
Date Deposited: 22 Oct 2020 12:03
URI: https://openaccess.city.ac.uk/id/eprint/25133
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