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Searching for and making genetic connections: recommendations for practice from donor conceived adults in the UK

Zadeh, S., Jadva, V. ORCID: 0000-0003-0922-0694 & Jones, C. (2024). Searching for and making genetic connections: recommendations for practice from donor conceived adults in the UK. Reproductive BioMedicine Online, 48(1), article number 103418. doi: 10.1016/j.rbmo.2023.103418


Research question
What are the support needs of donor conceived individuals who are searching for or open to matching with genetic connections?

A total of 88 donor conceived adults in the UK participated in an online survey open between January and August 2022. Participants were asked about their level of awareness of current resource provision, recommendations for resources to support the process of searching for genetic connections, and recommendations for resources to support with feelings about searching for or being found by genetic connections.

Participants were found to have varying levels of awareness of the resources available to them, with 39% describing themselves as aware, 41% as partly aware and 20% as unaware. Their recommendations for practical and emotional resources also varied. The most recommended resources for practical support were DNA testing and changes to UK law. The most recommended resources for emotional support were counselling and peer and other support groups.

The impact of legal and technological changes such as direct-to-consumer DNA testing and the legal transition to identifiable donation may be felt by donor conceived individuals irrespective of their year of birth. The wishes of donor conceived individuals for different support resources should be borne in mind by practitioners, regulatory bodies, and policy makers going forward.

Publication Type: Article
Additional Information: This is an open access article distributed under the terms of the Creative Commons CC-BY license, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
Publisher Keywords: Counselling, Direct-to-consumer DNA testing, Donor conception, Genetic connections, Support
Subjects: B Philosophy. Psychology. Religion > BF Psychology
K Law > K Law (General)
R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
Departments: School of Health & Psychological Sciences > Psychology
SWORD Depositor:
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