Co-designing a peer support programme for carers of people treated under the Mental Health Act: views from stakeholders
Wells, I., Wintsch, K., G-Medhin, A. , Lloyd-Evans, B., Gillard, S. ORCID: 0000-0002-9686-2232, McCabe, R.
ORCID: 0000-0003-2041-7383, Mohamudbucus, M. Y., Mahlke, C., Nagel, K., Muhxinga, Z., Singh, S., Priebe, S. & Giacco, D. (2025).
Co-designing a peer support programme for carers of people treated under the Mental Health Act: views from stakeholders.
BMC Psychiatry, 25(1),
article number 460.
doi: 10.1186/s12888-025-06851-y
Abstract
Background: Relatives/friends (carers) of people who are involuntarily admitted to a psychiatric hospital report high levels of stress, feelings of isolation and exclusion from their patient’s care. One-to-one peer support is widely implemented for patients, facilitating mental health recovery. Preliminary evidence reports that peer support may benefit carers too, but a one-to-one peer support programme to help carers when their relatives/friends are in hospital has not been developed.
Objective: To explore carers’, patients’, and professionals’ views on what an accessible, feasible and helpful one-to-one peer support intervention should consider for carers of patients treated under the Mental Health Act (MHA) in England.
Method: Nineteen one-to-one interviews were conducted online with five carers, four patients, four clinicians, four independent mental health advocates and two behaviour change experts. Participants had experience of either being treated or supporting someone treated under the MHA within the last 10 years. Audio recordings of the interviews were transcribed, and data were analysed using thematic analysis.
Results: Five themes were identified: (a) carer availability and awareness; (b) peer support flexibility; (c) early promotion of peer support; (d) appropriate training and support for peers, and; (e) anticipated impact of peer support. Carers’ lack of time and awareness of support were reported as key barriers to accessing peer support. To address this, participants emphasised the need for early introduction of support following patients’ hospitalisation and flexible delivery through various communication channels. They also highlighted the need for robust, interactive training for peer supporters. Expected benefits included improved carer and peer supporter wellbeing and increased carer knowledge and empowerment.
Conclusions: These findings highlight the need for structured training for peer supporters and a flexible, accessible peer support programme for carers. The findings can inform evidence-based co-production of a carer peer support programme for use in England, which could improve carer wellbeing, knowledge and empowerment.
Publication Type: | Article |
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Additional Information: | This article is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License, which permits any non-commercial use, sharing, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if you modified the licensed material. You do not have permission under this licence to share adapted material derived from this article or parts of it. The images or other third party material in this article are included in the article’s Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by-nc-nd/4.0/. |
Publisher Keywords: | Peer support, Family members, Relatives, Carers, Mental Health Act, Mental health, Qualitative |
Subjects: | R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine |
Departments: | School of Health & Medical Sciences School of Health & Medical Sciences > Nursing |
SWORD Depositor: |
Available under License Creative Commons Attribution Non-commercial No Derivatives.
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