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"It feels like I'm managing myself": HIV+ people tracking their personal health information

Bussone, A., Stumpf, S. & Buchanan, G. (2016). "It feels like I'm managing myself": HIV+ people tracking their personal health information. In: ACM International Conference Proceeding Series. . New York, USA: ACM. ISBN 9781450347631 doi: 10.1145/2971485.2971542


Nearly 37 million people live with HIV globally and recent advances in medicine have transformed HIV to a chronic disease, if managed. Previous research in Personal Health Informatics has investigated how people self-manage other chronic conditions, such as diabetes, by tracking and reflecting on their health information but there is little knowledge of how people do so for complex and socially stigmatized diseases like HIV. A better understanding of their specialized needs could lead to the development of more appropriate tools to self-manage their condition. Our paper introduces an iterative process model of Personal Health Informatics. We then describe the results of an empirical study involving HIV+ adults aimed at understanding their issues, concerns and actions in each of the stages of this process model. We provide implications for the design of personal informatics tools and open research directions that can lead to better self-management for people living with HIV.

Publication Type: Conference or Workshop Item (Paper)
Additional Information: "© Bussone, Stumpf, Buchanan | ACM 2016. This is the author's version of the work. It is posted here for your personal use. Not for redistribution. The definitive Version of Record was published in {Source Publication},
Publisher Keywords: Personal Health Informatics; HIV; Personal Informatics; Self-Management; Model
Subjects: R Medicine > RA Public aspects of medicine
Z Bibliography. Library Science. Information Resources > Z665 Library Science. Information Science
Departments: School of Science & Technology > Computer Science > Human Computer Interaction Design
Text - Accepted Version
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