City Research Online

End-user Perspectives on the Development of an Online Intervention for Parents of Children on the Autism Spectrum

Hermaszewska, S. & Sin, J. ORCID: 0000-0003-0590-7165 (2021). End-user Perspectives on the Development of an Online Intervention for Parents of Children on the Autism Spectrum. Autism, 25(5), pp. 1234-1245. doi: 10.1177/1362361320984895

Abstract

Strong evidence suggests that parents of children on the autism spectrum face increased stressors to their physical and mental wellbeing due to the demands of caregiving and paucity of support. The disparity between the services currently offered and unmet needs indicates that accessible and flexible support through online delivery is needed for parents. This study presents the ideas and perspectives collected from five focus groups of 17 parents of autistic children, on the optimal content and implementation strategy of an online intervention. Using thematic framework analysis, we derived themes under the categories: the need for online interventions; content and design; and implementation. Parents supported the development of a multicomponent online intervention which combines psychoeducation with peer support and access to healthcare professionals.

Publication Type: Article
Additional Information: This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
Publisher Keywords: Autism, parents, family caregiver, eHealth, online intervention
Subjects: H Social Sciences > HQ The family. Marriage. Woman
R Medicine > RT Nursing
Departments: School of Health & Psychological Sciences > Nursing
SWORD Depositor:
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