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Processing of Positive Newborn Screening Results for Congenital Hypothyroidism: A Qualitative Exploration of Current Practice in England

Holder, P., Cheetham, T., Cocca, A., Chinnery, H. and Chudleigh, J. H. ORCID: 0000-0002-7334-8708 (2021). Processing of Positive Newborn Screening Results for Congenital Hypothyroidism: A Qualitative Exploration of Current Practice in England. International Journal of Neonatal Screening, 7(4), 64. doi: 10.3390/ijns7040064

Abstract

The objective of this research was to explore current communication practices for positive newborn bloodspot screening results for congenital hypothyroidism from the newborn bloodspot screening laboratory to clinicians and then families, in order to (i) understand how the pathway is implemented in practice, (ii) highlight regional differences and (iii) identify barriers and facilitators. A qualitative exploratory design was employed using semi-structured interviews across 13 newborn bloodspot screening laboratories in England. Participants included 35 clinicians and 17 NBS laboratory staff across the 13 laboratories and 18 members of relevant clinical teams. Findings illuminated variations in how positive newborn bloodspot screening results for congenital hypothyroidism are communicated in practice. This included regional variations due to historical arrangements and local resources. Contacting the appropriate person could be challenging and obtaining feedback from clinical teams to the laboratory after the child has been seen could be time consuming for those involved. Standardised communication model(s) for positive newborn bloodspot screening results for congenital hypothyroidism, which include named contact individuals, defined pathways of care and processes for feeding back to laboratories, may help to ensure the process is less labour intensive, particularly from a laboratory perspective.

Publication Type: Article
Additional Information: This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited
Publisher Keywords: communication; congenital hypothyroidism; newborn bloodspot screening
Subjects: R Medicine > RC Internal medicine
R Medicine > RJ Pediatrics
Departments: School of Health Sciences > Nursing
Date available in CRO: 07 Dec 2021 16:36
Date deposited: 7 December 2021
Date of acceptance: 6 October 2021
Date of first online publication: 13 October 2021
URI: https://openaccess.city.ac.uk/id/eprint/27189
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