City Research Online

Abstract

Promoting online peer support beyond the informal sector to statutory health services requires ethical considerations and evidence-based knowledge about its impact on patients, health care professionals, and the wider health care system. Evidence on the effectiveness of digital interventions in primary care is sparse, and definitive guidance is lacking on the ethical concerns arising from the use of social media as a means for health-related interventions and research. Existing literature examining ethical issues with digital interventions in health care mainly focuses on apps, electronic health records, wearables, and telephone or video consultations, without necessarily covering digital social interventions, and does not always account for primary care settings specifically. Here we address the ethical and information governance aspects of undertaking research on the promotion of online peer support to patients by primary care clinicians, related to medical and public health ethics.

Publication Type:	Article
Additional Information:	©Georgios Dimitrios Karampatakis, Helen E Wood, Chris J Griffiths, Nathan C Lea, Richard E Ashcroft, Bill Day, Neil Walker, Neil S Coulson, Anna De Simoni. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 27.09.2023. This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on https://www.jmir.org/, as well as this copyright and license information must be included.
Publisher Keywords:	data governance; digital health; digital intervention; digital social interventions; ethics; information governance; online health communities; peer support; primary care; social intervention
Subjects:	B Philosophy. Psychology. Religion > BF Psychology B Philosophy. Psychology. Religion > BJ Ethics R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine T Technology > T Technology (General)
Departments:	The City Law School
SWORD Depositor:	Symplectic Administrator

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