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Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom

Crane, L., Chester, J. W., Goddard, L. , Henry, L. ORCID: 0000-0001-5422-4358 & Hill, E. L. ORCID: 0000-0003-3130-1271 (2016). Experiences of autism diagnosis: A survey of over 1000 parents in the United Kingdom. Autism, 20(2), pp. 153-162. doi: 10.1177/1362361315573636


A sample of 1047 parents completed an online survey about their experiences and opinions regarding the process of attaining a diagnosis of autism spectrum disorder for their children. The results revealed that parents usually waited a year from when they first had concerns about their child's development before they sought professional help. On average, there was a delay of around 3.5 years from the point at which parents first approached a health professional with their concerns to the confirmation of an autism spectrum disorder diagnosis. Just over half of the parents surveyed were dissatisfied with the diagnostic process as a whole. Several factors predicted parents' overall levels of satisfaction with the diagnostic process, including the time taken to receive a diagnosis, satisfaction with the information provided at diagnosis, the manner of the diagnosing professional, the stress associated with the diagnostic process and satisfaction with post-diagnostic support. Post-diagnosis, the support (if any) that was provided to parents was deemed unsatisfactory, and this was highlighted as an area of particular concern among parents.

Publication Type: Article
Additional Information: Copyright Sage 2015
Publisher Keywords: autism, autism spectrum disorder (ASD), diagnosis, parent, survey, satisfaction, support
Subjects: R Medicine > RC Internal medicine
R Medicine > RJ Pediatrics
Departments: School of Health & Psychological Sciences
Text - Accepted Version
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