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Dunbar, H. M. P. ORCID: 0000-0002-7149-5122, Crabb, D. P., Behning, C. ORCID: 0000-0002-9310-3804 , Binns, A. M. ORCID: 0000-0001-8621-498X, Abdirahman, A., Terheyden, J. H., Poor MRCOphth, S. ORCID: 0000-0003-4374-1178, Finger, R. P., Leal, S. ORCID: 0000-0001-7870-0478, Tufail, A., Holz, F. G., Schmid, M. & Luhmann, U. F. O.view all authors (2025). Heterogeneous Visual Function Deficits in Intermediate Age-Related Macular Degeneration: A MACUSTAR Report. Ophthalmology Science, 5(4), article number 100708. doi: 10.1016/j.xops.2025.100708

Terheyden, J. H., Holz, F. G., Behning, C. , Dunbar, H. M. P., Schmitz-Valckenberg, S., Tufail, A., Schmid, M., Crabb, D. P. ORCID: 0000-0001-8611-1155, Saßmannshausen, M., Binns, A. ORCID: 0000-0001-8621-498X, Hoyng, C. B., Zakaria, N., Poor, S., Moll, K-P., Cosette, D., Martinho, C., Batuca, J., Cunha-Vaz, J., Luhmann, U. F. O., Leal, S. & Finger, R. P.view all authors (2025). The Spectrum of Functional, Structural and Patient-Reported Outcomes in Intermediate Age-Related Macular Degeneration – A MACUSTAR Study Report. Ophthalmologica, 248(2), pp. 101-111. doi: 10.1159/000543231

Terheyden, J. H., Dunbar, H. M. P., Schmitz-Valckenberg, S. , Behning, C., Martinho, C., Luhmann, U. F. O., Saßmannshausen, M., Lüning, A., Miliu, A., Aires, I. D., Basile, P. G., Batuca, J., Schmid, M., Moll, K-P., Zakaria, N., Tufail, A., Binns, A., Crabb, D. P. ORCID: 0000-0001-8754-3902, Leal, S., Finger, R. P., Holz, F. G., Agostini, H., Aires, I. D., Altay, L., Atia, R., Bandello, F., Basile, P. G., Batuca, J., Behning, C., Belmouhand, M., Berger, M., Binns, A. ORCID: 0000-0001-8621-498X, Boon, C. J. F., Böttger, M., Brazier, J. E., Carapezzi, C., Carlton, J., Carneiro, A., Charil, A., Coimbra, R., Cosette, D., Cozzi, M., Crabb, D. P., Cunha-Vaz, J., Dahlke, C., Dunbar, H., Finger, R. P., Fletcher, E., Gutfleisch, M., Hartgers, F., Higgins, B., Hildebrandt, J., Höck, E., Hogg, R., Holz, F. G., Hoyng, C. B., Kilani, A., Krätzschmar, J., Kühlewein, L., Larsen, M., Leal, S., Lechanteur, Y. T. E., Lu, D., Luhmann, U. F. O., Lüning, A., Manivannan, N., Marques, I., Martinho, C., Miliu, A., Moll, K. P., Mulyukov, Z., Paques, M., Parodi, B., Parravano, M., Penas, S., Peters, T., Peto, T., Priglinger, S., Ramamirtham, R., Ribeiro, R., Rowen, D., Rubin, G. S., Sahel, J., Sánchez, C., Sander, O., Saßmannshausen, M., Schmid, M., Schmitz-Valckenberg, S., Siedlecki, J., Silva, R., Souied, E., Staurenghi, G., Tavares, J., Taylor, D. J. ORCID: 0000-0001-8261-5225, Terheyden, J. H., Tufail, A., Valmaggia, P., Varano, M., Wolf, A. & Zakaria, N.view all authors (2025). Validating candidate endpoints for intermediate age-related macular degeneration trials in a multi-centre setting—lessons from the MACUSTAR study. Eye, 39(6), pp. 1031-1039. doi: 10.1038/s41433-024-03568-2

Terheyden, J. H., Gittel, L., Jungblut, J. , Taylor, D. J. ORCID: 0000-0001-8261-5225, Holz, F. G., Crabb, D. P. ORCID: 0000-0001-8611-1155 & Finger, R. P.view all authors (2024). Heterogeneity of patient-reported outcome measures in clinical research. Health and Quality of Life Outcomes, 22(1), article number 65. doi: 10.1186/s12955-024-02282-7

Rowen, D., Carlton, J., Terheyden, J. H. , Finger, R. P., Wickramasekera, N., Brazier, J., Agostini, H., Altay, L., Atia, R., Bandello, F., Basile, P. G., Behning, C., Belmouhand, M., Berger, M., Binns, A. ORCID: 0000-0001-8621-498X, Boon, C. J. F., Böttger, M., Bouchet, C., Brazier, J. E., Butt, T., Carapezzi, C., Carlton, J., Carneiro, A., Charil, A., Coimbra, R., Cozzi, M., Crabb, D. P. ORCID: 0000-0001-8611-1155, Cunha-Vaz, J., Dahlke, C., de Sisternes, L., Dunbar, H., Finger, R. P., Fletcher, E., Floyd, H., Francisco, C., Gutfleisch, M., Hogg, R., Holz, F. G., Hoyng, C. B., Kilani, A., Krätzschmar, J., Kühlewein, L., Larsen, M., Leal, S., Lechanteur, Y. T. E., Luhmann, U. F. O., Lüning, A., Marques, I., Martinho, C., Montesano, G. ORCID: 0000-0002-9148-2804, Mulyukov, Z., Paques, M., Parodi, B., Parravano, M., Penas, S., Peters, T., Peto, T., Pfau, M., Poor, S., Priglinger, S., Rowen, D., Rubin, G. S., Sahel, J., Sanches Fernandes, D., Sánchez, C., Sander, O., Saßmannshausen, M., Schmid, M., Schmitz-Valckenberg, S., Schrinner-Fenske, H., Siedlecki, J., Silva, R., Skelly, A., Souied, E., Staurenghi, G., Stöhr, L., Tavares, D., Tavares, J., Taylor, D. J. ORCID: 0000-0001-8261-5225, Terheyden, J. H., Thiele, S., Tufail, A., Varano, M., Vieweg, L., Werner, J., Wintergerst, L., Wolf, A. & Zakaria, N.view all authors (2024). Development and Valuation of a Preference-Weighted Measure in Age-Related Macular Degeneration From the Vision Impairment in Low Luminance Questionnaire—A MACUSTAR Report. Value in Health, 27(5), pp. 642-654. doi: 10.1016/j.jval.2024.02.001

von der Emde, L., Mallwitz, M., Vaisband, M. , Hasenauer, J., Saßmannshausen, M., Terheyden, J. H., Agostini, H., Altay, L., Atia, R., Bandello, F., Basile, P. G., Batuca, J., Behning, C., Belmouhand, M., Berger, M., Binns, A. M. ORCID: 0000-0001-8621-498X, Boon, C. J. F., Böttger, M., Bouchet, C., Brazier, J E., Butt, T., Carapezzi, C., Carlton, J., Carneiro, A., Charil, A., Coimbra, R., Cozzi, M., Crabb, D. P. ORCID: 0000-0001-8611-1155, Cunha-Vaz, J., Dahlke, C., de Sisternes, L., Dunbar, H., Finger, R. P., Fletcher, E, Floyd, H., Francisco, C., Gutfleisch, M., Hinz, S., Hogg, R., Holz, F. G., Hoyng, C. B., Kilani, A., Krätzschmar, J., Kühlewein, L., Larsen, M., Leal, S., Lechanteur, Y. T. E., Luhmann, U. F. O., Lüning, A., Marques, I., Martinho, C., Montesano, G. ORCID: 0000-0002-9148-2804, Mulyukov, Z., Paques, M., Parodi, B., Parravano, M., Penas, S., Peters, T., Peto, T., Pfau, M., Poor, S., Priglinger, S., Rowen, D., Rubin, G. S., Sahel, J., Sánchez, C., Sander, O., Schmid, M., Schmitz-Valckenberg, S., Siedlecki, J., Silva, R., Skelly, A., Souied, E., Staurenghi, G., Stöhr, L., Taylor, D. J., Terheyden, J. H., Thiele, S., Tufail, A., Varano, M., Vieweg, L., Wintergerst, L., Wolf, A., Zakaria, N., Sloan, K. R., Schmitz-Valckenberg, S., Finger, R. P., Holz, F. G. & Ach, T.view all authors (2023). Retest variability and patient reliability indices of quantitative fundus autofluorescence in age-related macular degeneration: a MACUSTAR study report. Scientific Reports, 13(1), article number 17417. doi: 10.1038/s41598-023-43417-y

Higgins, B. E. ORCID: 0000-0002-4530-6156, Montesano, G. ORCID: 0000-0002-9148-2804, Dunbar, H. M. P. , Binns, A. M. ORCID: 0000-0001-8621-498X, Taylor, D. J. ORCID: 0000-0001-8261-5225, Behning, C., Abdirahman, A., Schmid, M. C., Terheyden, J. H., Zakaria, N., Poor, S., Finger, R. P., Leal, S., Holz, F. G., Rubin, G. S., Luhmann, U. F. O., Crabb, D. P. ORCID: 0000-0001-8611-1155 & MACUSTAR Consortiumview all authors (2023). Test-Retest Variability and Discriminatory Power of Measurements From Microperimetry and Dark Adaptation Assessment in People With Intermediate Age-Related Macular Degeneration - A MACUSTAR Study Report.. Translational Vision Science & Technology, 12(7), article number 19. doi: 10.1167/tvst.12.7.19

Saßmannshausen, M., Behning, C., Weinz, J. , Goerdt, L., Terheyden, J. H., Chang, P., Schmid, M., Poor, S., Zakaria, N., Finger, R. P., Holz, F. G., Pfau, M., Schmitz-Valckenberg, S., Thiele, S., MACUSTAR consortium members, Binns, A. M. ORCID: 0000-0001-8621-498X, Carlton, J., Crabb, D. P. ORCID: 0000-0001-8611-1155, Montesano, G. ORCID: 0000-0002-9148-2804 & Taylor, D. J. ORCID: 0000-0001-8261-5225view all authors (2023). Characteristics and Spatial Distribution of Structural Features in Age-Related Macular Degeneration: A MACUSTAR Study Report. Ophthalmology Retina, 7(5), pp. 420-430. doi: 10.1016/j.oret.2022.12.007

Garzone, D., Terheyden, J. H., Morelle, O. , Wintergerst, M. W. M., Saßmannshausen, M., Schmitz-Valckenberg, S., Pfau, M., Thiele, S., Poor, S., Leal, S., Holz, F. G., Finger, R., MACUSTAR Consortium, Crabb, D. P. ORCID: 0000-0001-8611-1155 & Montesano, G. ORCID: 0000-0002-9148-2804view all authors (2022). Comparability of automated drusen volume measurements in age-related macular degeneration: a MACUSTAR study report. Scientific Reports, 12(1), article number 21911. doi: 10.1038/s41598-022-26223-w

Saßmannshausen, M., Behning, C., Isselmann, B. , Schmid, M., Finger, R. P., Holz, F. G., Schmitz-Valckenberg, S., Pfau, M., Thiele, S, Montesano, G., Crabb, D. P. ORCID: 0000-0001-8611-1155 & MACUSTAR Consortiumview all authors (2022). Relative ellipsoid zone reflectivity and its association with disease severity in age-related macular degeneration: a MACUSTAR study report. Scientific Reports, 12(1), article number 14933. doi: 10.1038/s41598-022-18875-5

Dunbar, H. M. P., Behning, C., Abdirahman, A. , Higgins, B. E. ORCID: 0000-0002-4530-6156, Binns, A. M. ORCID: 0000-0001-8621-498X, Terheyden, J. H., Zakaria, N., Poor, S., Finger, R. P., Leal, S., Holz, F. G., Schmid, M., Crabb, D. P. ORCID: 0000-0001-8611-1155, Rubin, G. S. & Luhmann, U. F. O.view all authors (2022). Repeatability and Discriminatory Power of Chart-Based Visual Function Tests in Individuals With Age-Related Macular Degeneration: A MACUSTAR Study Report. JAMA Ophthalmology, 140(8), doi: 10.1001/jamaophthalmol.2022.2113

Terheyden, J. H., Behning, C., Lüning, A. , Wintergerst, L., Basile, P., Tavares, D., Melício, B., Leal, S., Weissgerber, G., Luhmann, U. F. O., Crabb, D. P. ORCID: 0000-0001-8754-3902, Tufail, A., Hoyng, C., Berger, M., Schmid, M., Silva, R., Martinho, C., Cunha-Vaz, J., Holz, F. G., Finger, R. P. & MACUSTAR consortiumview all authors (2021). Challenges, facilitators and barriers to screening study participants in early disease stages-experience from the MACUSTAR study. BMC Medical Research Methodology, 21(1), article number 54. doi: 10.1186/s12874-021-01243-8

Terheyden, J. H., Schmitz-Valckenberg, S., Crabb, D. P. ORCID: 0000-0001-8754-3902 , Dunbar, H., Luhmann, U. F. O., Behning, C., Schmid, M., Pires, I., Cunha-Vaz, J., Tufail, A., Weissgerber, G., Leal, S., Holz, F. G. & Finger, R. P.view all authors (2020). Use of composite endpoints in early and intermediate age-related macular degeneration clinical trials - state-of-the-art and future directions. Ophthalmologica, 244(5), pp. 387-395. doi: 10.1159/000513591

Terheyden, J. H., Holz, F. G., Schmitz-Valckenberg, S. , Lüning, A., Schmid, M., Rubin, G. S., Dunbar, H., Tufail, A., Crabb, D. P. ORCID: 0000-0001-8754-3902, Binns, A. M., Sánchez, C. I., Hoyng, C., Margaron, P., Zakaria, N., Durbin, M., Luhmann, U., Zamiri, P., Cunha-Vaz, J., Martinho, C., Leal, S., Finger, R. P. & MACUSTAR consortiumview all authors (2020). Clinical study protocol for a low-interventional study in intermediate age-related macular degeneration developing novel clinical endpoints for interventional clinical trials with a regulatory and patient access intention-MACUSTAR.. Trials, 21(1), article number 659. doi: 10.1186/s13063-020-04595-6

Finger, R. P., Schmitz-Valckenberg, S., Schmidt, M. , Rubin, G. S., Dunbar, H., Tufail, A., Crabb, D. P. ORCID: 0000-0001-8754-3902, Binns, A. M. ORCID: 0000-0001-8621-498X, Sánchez, C. I., Margaron, P., Normand, G., Durbin, M. K., Luhmann, U. F. O., Zamiri, P., Cunha-Vaz, J., Asmus, F. & Holz, F. G.view all authors (2018). MACUSTAR: Development and Clinical Validation of Functional, Structural, and Patient-Reported Endpoints in Intermediate Age-Related Macular Degeneration. Ophthalmologica, 241(2), pp. 61-72. doi: 10.1159/000491402

Conference or Workshop Item

Dunbar, H. M. P., Sassmannshausen, M., Behning, C. , Thiele, S., Binns, A. M. ORCID: 0000-0001-8621-498X, Higgins, B. E. ORCID: 0000-0002-4530-6156, Terheyden, J. H., Tufail, A., Leal, S., Zakaria, N., Holz, F. G., Schmid, M., Finger, R. P., Crabb, D. P. ORCID: 0000-0001-8611-1155, Schmitz-Valckenberg, S. & Luhmann, U. F. O.view all authors (2022). Comparison of visual function in structurally defined sub-phenotypes of intermediate AMD: A MACUSTAR study report. In: Investigative Ophthalmology & Visual Science. ARVO Annual Meeting 2022, 1-4 May 2022, Denver, USA.

Pohlmann, D., Terheyden, J. H., Berger, M. , Ometto, G., Montesano, G., Neuber, F., Wintergerst, M. W. M., Aslam, T., Liu, X., Holz, F. G., Keane, P. A., Crabb, D. P., Denniston, A. K., Finger, R. & Pleyer, U.view all authors (2020). OCT-based automated vitreous inflammation score: a promising biomarker in dexamethasone implant treated uveitis patients. In: Investigative Ophthalmology & Visual Science (IOVS). ARVO Annual Meeting 2020, 3 - 7 May 2020, Baltimore, USA.