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Terheyden, J. H., Dunbar, H. M. P., Schmitz-Valckenberg, S. , Behning, C., Martinho, C., Luhmann, U. F. O., Saßmannshausen, M., Lüning, A., Miliu, A., Aires, I. D., Basile, P. G., Batuca, J., Schmid, M., Moll, K-P., Zakaria, N., Tufail, A., Binns, A., Crabb, D. P. ORCID: 0000-0001-8754-3902, Leal, S., Finger, R. P., Holz, F. G., Agostini, H., Aires, I. D., Altay, L., Atia, R., Bandello, F., Basile, P. G., Batuca, J., Behning, C., Belmouhand, M., Berger, M., Binns, A. ORCID: 0000-0001-8621-498X, Boon, C. J. F., Böttger, M., Brazier, J. E., Carapezzi, C., Carlton, J., Carneiro, A., Charil, A., Coimbra, R., Cosette, D., Cozzi, M., Crabb, D. P., Cunha-Vaz, J., Dahlke, C., Dunbar, H., Finger, R. P., Fletcher, E., Gutfleisch, M., Hartgers, F., Higgins, B., Hildebrandt, J., Höck, E., Hogg, R., Holz, F. G., Hoyng, C. B., Kilani, A., Krätzschmar, J., Kühlewein, L., Larsen, M., Leal, S., Lechanteur, Y. T. E., Lu, D., Luhmann, U. F. O., Lüning, A., Manivannan, N., Marques, I., Martinho, C., Miliu, A., Moll, K. P., Mulyukov, Z., Paques, M., Parodi, B., Parravano, M., Penas, S., Peters, T., Peto, T., Priglinger, S., Ramamirtham, R., Ribeiro, R., Rowen, D., Rubin, G. S., Sahel, J., Sánchez, C., Sander, O., Saßmannshausen, M., Schmid, M., Schmitz-Valckenberg, S., Siedlecki, J., Silva, R., Souied, E., Staurenghi, G., Tavares, J., Taylor, D. J. ORCID: 0000-0001-8261-5225, Terheyden, J. H., Tufail, A., Valmaggia, P., Varano, M., Wolf, A. & Zakaria, N.view all authors (2025). Validating candidate endpoints for intermediate age-related macular degeneration trials in a multi-centre setting—lessons from the MACUSTAR study. Eye, 39(6), pp. 1031-1039. doi: 10.1038/s41433-024-03568-2

Higgins, B., Taylor, D. J. ORCID: 0000-0001-8261-5225, Crabb, D. ORCID: 0000-0001-8611-1155 & Callaghan, T. ORCID: 0000-0002-9258-8504view all authors (2024). Emotional well-being in Charles Bonnet syndrome: exploring associations with negative affect, loneliness and quality of life. Therapeutic Advances in Ophthalmology, 16, article number 25158414241275444. doi: 10.1177/25158414241275444

Terheyden, J. H., Gittel, L., Jungblut, J. , Taylor, D. J. ORCID: 0000-0001-8261-5225, Holz, F. G., Crabb, D. P. ORCID: 0000-0001-8611-1155 & Finger, R. P.view all authors (2024). Heterogeneity of patient-reported outcome measures in clinical research. Health and Quality of Life Outcomes, 22(1), article number 65. doi: 10.1186/s12955-024-02282-7

Rowen, D., Carlton, J., Terheyden, J. H. , Finger, R. P., Wickramasekera, N., Brazier, J., Agostini, H., Altay, L., Atia, R., Bandello, F., Basile, P. G., Behning, C., Belmouhand, M., Berger, M., Binns, A. ORCID: 0000-0001-8621-498X, Boon, C. J. F., Böttger, M., Bouchet, C., Brazier, J. E., Butt, T., Carapezzi, C., Carlton, J., Carneiro, A., Charil, A., Coimbra, R., Cozzi, M., Crabb, D. P. ORCID: 0000-0001-8611-1155, Cunha-Vaz, J., Dahlke, C., de Sisternes, L., Dunbar, H., Finger, R. P., Fletcher, E., Floyd, H., Francisco, C., Gutfleisch, M., Hogg, R., Holz, F. G., Hoyng, C. B., Kilani, A., Krätzschmar, J., Kühlewein, L., Larsen, M., Leal, S., Lechanteur, Y. T. E., Luhmann, U. F. O., Lüning, A., Marques, I., Martinho, C., Montesano, G. ORCID: 0000-0002-9148-2804, Mulyukov, Z., Paques, M., Parodi, B., Parravano, M., Penas, S., Peters, T., Peto, T., Pfau, M., Poor, S., Priglinger, S., Rowen, D., Rubin, G. S., Sahel, J., Sanches Fernandes, D., Sánchez, C., Sander, O., Saßmannshausen, M., Schmid, M., Schmitz-Valckenberg, S., Schrinner-Fenske, H., Siedlecki, J., Silva, R., Skelly, A., Souied, E., Staurenghi, G., Stöhr, L., Tavares, D., Tavares, J., Taylor, D. J. ORCID: 0000-0001-8261-5225, Terheyden, J. H., Thiele, S., Tufail, A., Varano, M., Vieweg, L., Werner, J., Wintergerst, L., Wolf, A. & Zakaria, N.view all authors (2024). Development and Valuation of a Preference-Weighted Measure in Age-Related Macular Degeneration From the Vision Impairment in Low Luminance Questionnaire—A MACUSTAR Report. Value in Health, 27(5), pp. 642-654. doi: 10.1016/j.jval.2024.02.001

Dinah, C. ORCID: 0000-0002-0815-4771, Enoch, J. ORCID: 0000-0002-4614-6676, Ghulakhszian, A. , Sekhon, M., Crabb, D. P. ORCID: 0000-0001-8611-1155 & Taylor, D. J. ORCID: 0000-0001-8261-5225view all authors (2024). Patient acceptability of intravitreal complement inhibitors in geographic atrophy (GA): protocol for a UK-based cross-sectional study. BMJ Open, 14(1), article number e075713. doi: 10.1136/bmjopen-2023-075713

Taylor, D. J. ORCID: 0000-0001-8261-5225, Alquiza, P. J., Jones, P. R. ORCID: 0000-0001-7672-8397 , Wilson, I., Bi, W., Sim, D. A. & Crabb, D. P. ORCID: 0000-0001-8611-1155view all authors (2023). Tablet-based tests of everyday visual function in a diabetic macular oedema (DME) clinic waiting area: A feasibility study. Ophthalmic And Physiological Optics, 44(2), pp. 388-398. doi: 10.1111/opo.13261

von der Emde, L., Mallwitz, M., Vaisband, M. , Hasenauer, J., Saßmannshausen, M., Terheyden, J. H., Agostini, H., Altay, L., Atia, R., Bandello, F., Basile, P. G., Batuca, J., Behning, C., Belmouhand, M., Berger, M., Binns, A. M. ORCID: 0000-0001-8621-498X, Boon, C. J. F., Böttger, M., Bouchet, C., Brazier, J E., Butt, T., Carapezzi, C., Carlton, J., Carneiro, A., Charil, A., Coimbra, R., Cozzi, M., Crabb, D. P. ORCID: 0000-0001-8611-1155, Cunha-Vaz, J., Dahlke, C., de Sisternes, L., Dunbar, H., Finger, R. P., Fletcher, E, Floyd, H., Francisco, C., Gutfleisch, M., Hinz, S., Hogg, R., Holz, F. G., Hoyng, C. B., Kilani, A., Krätzschmar, J., Kühlewein, L., Larsen, M., Leal, S., Lechanteur, Y. T. E., Luhmann, U. F. O., Lüning, A., Marques, I., Martinho, C., Montesano, G. ORCID: 0000-0002-9148-2804, Mulyukov, Z., Paques, M., Parodi, B., Parravano, M., Penas, S., Peters, T., Peto, T., Pfau, M., Poor, S., Priglinger, S., Rowen, D., Rubin, G. S., Sahel, J., Sánchez, C., Sander, O., Schmid, M., Schmitz-Valckenberg, S., Siedlecki, J., Silva, R., Skelly, A., Souied, E., Staurenghi, G., Stöhr, L., Taylor, D. J., Terheyden, J. H., Thiele, S., Tufail, A., Varano, M., Vieweg, L., Wintergerst, L., Wolf, A., Zakaria, N., Sloan, K. R., Schmitz-Valckenberg, S., Finger, R. P., Holz, F. G. & Ach, T.view all authors (2023). Retest variability and patient reliability indices of quantitative fundus autofluorescence in age-related macular degeneration: a MACUSTAR study report. Scientific Reports, 13(1), article number 17417. doi: 10.1038/s41598-023-43417-y

Enoch, J. ORCID: 0000-0002-4614-6676, Ghulakhszian, A., Sekhon, M. , Crabb, D. P. ORCID: 0000-0001-8611-1155, Taylor, D. J. ORCID: 0000-0001-8261-5225 & Dinah, C.view all authors (2023). Piloting a forced-choice task to elicit treatment preferences in geographic atrophy. BMC Research Notes, 16(1), article number 244. doi: 10.1186/s13104-023-06531-8

Higgins, B. E. ORCID: 0000-0002-4530-6156, Montesano, G. ORCID: 0000-0002-9148-2804, Dunbar, H. M. P. , Binns, A. M. ORCID: 0000-0001-8621-498X, Taylor, D. J. ORCID: 0000-0001-8261-5225, Behning, C., Abdirahman, A., Schmid, M. C., Terheyden, J. H., Zakaria, N., Poor, S., Finger, R. P., Leal, S., Holz, F. G., Rubin, G. S., Luhmann, U. F. O., Crabb, D. P. ORCID: 0000-0001-8611-1155 & MACUSTAR Consortiumview all authors (2023). Test-Retest Variability and Discriminatory Power of Measurements From Microperimetry and Dark Adaptation Assessment in People With Intermediate Age-Related Macular Degeneration - A MACUSTAR Study Report.. Translational Vision Science & Technology, 12(7), article number 19. doi: 10.1167/tvst.12.7.19

Enoch, J. ORCID: 0000-0002-4614-6676, Ghulakhszian, A., Sekhon, M. , Crabb, D. P. ORCID: 0000-0001-8611-1155, Taylor, D. J. ORCID: 0000-0001-8261-5225 & Dinah, C.view all authors (2023). Exploring patient acceptability of emerging intravitreal therapies for geographic atrophy: A mixed-methods study. Eye, 37(17), pp. 3634-3642. doi: 10.1038/s41433-023-02571-3

Saßmannshausen, M., Behning, C., Weinz, J. , Goerdt, L., Terheyden, J. H., Chang, P., Schmid, M., Poor, S., Zakaria, N., Finger, R. P., Holz, F. G., Pfau, M., Schmitz-Valckenberg, S., Thiele, S., MACUSTAR consortium members, Binns, A. M. ORCID: 0000-0001-8621-498X, Carlton, J., Crabb, D. P. ORCID: 0000-0001-8611-1155, Montesano, G. ORCID: 0000-0002-9148-2804 & Taylor, D. J. ORCID: 0000-0001-8261-5225view all authors (2023). Characteristics and Spatial Distribution of Structural Features in Age-Related Macular Degeneration: A MACUSTAR Study Report. Ophthalmology Retina, 7(5), pp. 420-430. doi: 10.1016/j.oret.2022.12.007

Enoch, J. ORCID: 0000-0002-4614-6676, Ghulakhszian, A., Sekhon, M. , Crabb, D. P. ORCID: 0000-0001-8611-1155, Taylor, D. J. ORCID: 0000-0001-8261-5225 & Dinah, C.view all authors (2023). Towards a Therapy for Geographic Atrophy: A Patient's Experience. Patient Prefer Adherence, 17, pp. 299-310. doi: 10.2147/ppa.s386662

Dinah, C., Enoch, J. ORCID: 0000-0002-4614-6676, Ghulakhszian, A. , Taylor, D. J. ORCID: 0000-0001-8261-5225 & Crabb, D. P. ORCID: 0000-0001-8754-3902view all authors (2021). Intravitreal treatment for geographic atrophy: coming soon to a patient near you?. Eye, 36(5), pp. 1121-1123. doi: 10.1038/s41433-021-01591-1

Enoch, J. ORCID: 0000-0002-4614-6676, Ghulakhszian, A., Crabb, D. P. ORCID: 0000-0001-8754-3902 , Dinah, C. & Taylor, D. J. ORCID: 0000-0001-8261-5225view all authors (2021). Acceptability of intravitreal injections in geographic atrophy: protocol for a mixed-methods pilot study. BMJ Open, 11(4), article number e049495. doi: 10.1136/bmjopen-2021-049495

Jones, L., Callaghan, T. ORCID: 0000-0002-9258-8504, Campbell, P. ORCID: 0000-0002-6019-1596 , Jones, P. R. ORCID: 0000-0001-7672-8397, Taylor, D. J. ORCID: 0000-0001-8261-5225, Asfaw, D. S, Edgar, D. F ORCID: 0000-0001-9004-264X & Crabb, D. P. ORCID: 0000-0001-8754-3902view all authors (2021). Acceptability of a home-based visual field test (Eyecatcher) for glaucoma home monitoring: a qualitative study of patients’ views and experiences. BMJ Open, 11(4), article number e043130. doi: 10.1136/bmjopen-2020-043130

Higgins, B. E., Taylor, D. J. ORCID: 0000-0001-8261-5225, Binns, A. M. ORCID: 0000-0001-8621-498X & Crabb, D. P. ORCID: 0000-0001-8754-3902view all authors (2021). Are Current Methods of Measuring Dark Adaptation Effective in Detecting the Onset and Progression of Age-Related Macular Degeneration? A Systematic Literature Review. Ophthalmology and Therapy, 10(1), pp. 21-38. doi: 10.1007/s40123-020-00323-0

Taylor, D. J. ORCID: 0000-0001-8261-5225, Jones, L., Edwards, L. & Crabb, D. P. ORCID: 0000-0001-8754-3902view all authors (2021). Patient-reported outcome measures in ophthalmology: too difficult to read?. BMJ Open Ophthalmology, 6(1), article number e000693. doi: 10.1136/bmjophth-2020-000693

Higgins, B. E., Taylor, D. J. ORCID: 0000-0001-8261-5225, Bi, W. , Binns, A. M. ORCID: 0000-0001-8621-498X & Crabb, D. P. ORCID: 0000-0001-8754-3902view all authors (2020). Novel computer-based assessments of everyday visual function in people with age-related macular degeneration. PLoS ONE, 15(12), article number e0243578. doi: 10.1371/journal.pone.0243578

Jones, L., Taylor, D. J. ORCID: 0000-0001-8261-5225, Sii, F. , Masood, I., Crabb, D. P. ORCID: 0000-0001-8754-3902 & Shah, P.view all authors (2020). Only eye study 2 (OnES 2): 'Am I going to be able to see when the patch comes off?' A qualitative study of patient experiences of undergoing high-stakes only eye surgery. BMJ OPEN, 10(11), article number e038916. doi: 10.1136/bmjopen-2020-038916

Jones, P. R. ORCID: 0000-0001-7672-8397, Tigchelaar, I., Demaria, G. , Wilson, I., Bi, W., Taylor, D. J. ORCID: 0000-0001-8261-5225 & Crabb, D. P. ORCID: 0000-0001-8754-3902view all authors (2019). Refinement and preliminary evaluation of two tablet-based tests of real-world visual function. Ophthalmic & Physiological Optics, 40(1), pp. 35-46. doi: 10.1111/opo.12658

Taylor, D. J. ORCID: 0000-0001-8261-5225, Jones, L., Binns, A. M. ORCID: 0000-0001-8621-498X & Crabb, D. P. ORCID: 0000-0001-8754-3902view all authors (2019). Response to 'Comment on: 'You have got dry macular degeneration, end of story': a qualitative study into the experience of living with non-neovascular age-related macular degeneration'.. Eye, 34(10), pp. 1937-1938. doi: 10.1038/s41433-019-0732-4

Cooper, O. A. E., Taylor, D. J. ORCID: 0000-0001-8261-5225, Crabb, D. P. ORCID: 0000-0001-8754-3902 , Sim, D. A. & McBain, H. B.view all authors (2019). Psychological, social and everyday visual impact of diabetic macular oedema and diabetic retinopathy: a systematic review. Diabetic Medicine, 37(6), pp. 924-933. doi: 10.1111/dme.14125

Edwards, L. A., Taylor, D. J. ORCID: 0000-0001-8261-5225, Campbell, P. , Shah, R. ORCID: 0000-0002-6134-0936, Edgar, D. F & Crabb, D. P. ORCID: 0000-0001-8754-3902view all authors (2019). Feeling the pressure: a cross-sectional study exploring feasibility of a healthcare Pop-Up for intraocular pressure measurements in shopping centres in England. BMJ Open, 9(11), article number e030523. doi: 10.1136/bmjopen-2019-030523

Taylor, D. J. ORCID: 0000-0001-8261-5225, Smith, N. D., Jones, P. R. ORCID: 0000-0001-7672-8397 , Binns, A. M. ORCID: 0000-0001-8621-498X & Crabb, D. P. ORCID: 0000-0001-8754-3902view all authors (2019). Measuring dynamic levels of self-perceived anxiety and concern during simulated mobility tasks in people with non-neovascular age-related macular degeneration.. British Journal of Ophthalmology, 104(4), pp. 529-534. doi: 10.1136/bjophthalmol-2019-313864

Taylor, D. J. ORCID: 0000-0001-8261-5225, Jones, L., Binns, A. M. ORCID: 0000-0001-8621-498X & Crabb, D. P. ORCID: 0000-0001-8754-3902view all authors (2019). 'You've got dry macular degeneration, end of story': a qualitative study into the experience of living with non-neovascular age-related macular degeneration.. Eye, 34(3), pp. 461-473. doi: 10.1038/s41433-019-0445-8

Edwards, L. A., Campbell, P., Taylor, D. J. ORCID: 0000-0001-8261-5225 , Shah, R. ORCID: 0000-0002-6134-0936, Edgar, D. F ORCID: 0000-0001-9004-264X & Crabb, D. P. ORCID: 0000-0001-8754-3902view all authors (2019). Healthy shopper? Blood pressure testing in a shopping centre Pop-Up in England. BMC PUBLIC HEALTH, 19(1), article number 42. doi: 10.1186/s12889-018-6370-0

Enoch, J. ORCID: 0000-0002-4614-6676, Jones, L., Taylor, D. J. ORCID: 0000-0001-8261-5225 , Bronze, C., Kirwan, J. F., Jones, P. R. ORCID: 0000-0001-7672-8397 & Crabb, D. P. ORCID: 0000-0001-8754-3902view all authors (2019). How do different lighting conditions affect the vision and quality of life of people with glaucoma? A systematic review. Eye, 34(1), pp. 138-154. doi: 10.1038/s41433-019-0679-5

Jones, L., Taylor, D. J. ORCID: 0000-0001-8261-5225, Sii, F. , Masood, I., Crabb, D. P. ORCID: 0000-0001-8754-3902 & Shah, P.view all authors (2019). The Only Eye Study (OnES): a qualitative study of surgeon experiences of only eye surgery and recommendations for patient safety. BMJ Open, 9(12), article number e030068. doi: 10.1136/bmjopen-2019-030068

Edwards, L., Taylor, D. J. ORCID: 0000-0001-8261-5225, Shah, R. ORCID: 0000-0002-6134-0936 , Campbell, P. ORCID: 0000-0002-6019-1596, Edgar, D. F ORCID: 0000-0001-9004-264X & Crabb, D. P. ORCID: 0000-0001-8754-3902view all authors (2018). Feeling the pressure - Initial results from a shopping centre/mall Pop-Up for screening intra-ocular pressure (IOP) across England. Investigative Ophthalmology & Visual Science, 59(9), article number 42. doi: 10.1186/s12889-018-6370-0

Taylor, D. J., Smith, N. D., Binns, A. M. ORCID: 0000-0001-8621-498X & Crabb, D. P. ORCID: 0000-0001-8754-3902view all authors (2018). The effect of non-neovascular age-related macular degeneration on face recognition performance. Graefes Archive for Clinical and Experimental Ophthalmology, 256(4), pp. 815-821. doi: 10.1007/s00417-017-3879-3

Binns, A. M. ORCID: 0000-0001-8621-498X, Taylor, D. J. ORCID: 0000-0001-8261-5225, Edwards, L. A. & Crabb, D. P. ORCID: 0000-0001-8754-3902view all authors (2018). Determining Optimal Test Parameters for Assessing Dark Adaptation in People With Intermediate Age-Related Macular Degeneration. Investigative Ophthalmology & Visual Science, 59(4), pp. 114-121. doi: 10.1167/iovs.18-24211

Taylor, D. J. ORCID: 0000-0001-8261-5225, Edwards, L. A., Binns, A. M. & Crabb, D. P.view all authors (2018). Seeing it differently: self-reported description of vision loss in dry age-related macular degeneration. Ophthalmic and Physiological Optics, 38(1), pp. 98-105. doi: 10.1111/opo.12419

Taylor, D. J. ORCID: 0000-0001-8261-5225, Smith, N. D. & Crabb, D. P. ORCID: 0000-0001-8754-3902 (2017). Searching for Objects in Everyday Scenes: Measuring Performance in People With Dry Age-Related Macular Degeneration. Investigative Ophthalmology & Visual Science, 58(3), pp. 1887-1892. doi: 10.1167/iovs.16-21122

Crabb, D. P. & Taylor, D. J. ORCID: 0000-0001-8261-5225 (2017). Searching for unity: Real-world versus item-based visual search in age-related eye disease. Behavioral and Brain Sciences, 40, e135-. doi: 10.1017/s0140525x16000054

McDonald, L., Glen, F., Taylor, D. J. ORCID: 0000-0001-8261-5225 & Crabb, D. P.view all authors (2017). Self-Monitoring Symptoms in Glaucoma: A Feasibility Study of a Web-Based Diary Tool. Journal of Ophthalmology, 2017(12), pp. 1-8. doi: 10.1155/2017/8452840

Taylor, D. J. ORCID: 0000-0001-8261-5225, Hobby, A. E., Binns, A. M. & Crabb, D. P.view all authors (2016). How does age-related macular degeneration affect real-world visual ability and quality of life? A systematic review. BMJ Open, 6(12), article number e011504. doi: 10.1136/bmjopen-2016-011504

Conference or Workshop Item

Dunbar, H., Behning, C., Taylor, D. J. ORCID: 0000-0001-8261-5225 , Higgins, B. E. ORCID: 0000-0002-4530-6156, Montesano, G., Binns, A. M. ORCID: 0000-0001-8621-498X, Terheyden, J. H., Abdirahman, A., Zakaria, N., Poor, S., Rubin, G. S., Schmid, M., Crabb, D. P. ORCID: 0000-0001-8611-1155 & Luhmann, U. F. O.view all authors (2021). MACUSTAR cross-sectional data: Repeatability and discriminatory power of visual function tests. In: Investigative Ophthalmology & Visual Science. 2021 ARVO Annual Meeting, 1-7 May 2021, Online.

Taylor, D. J. ORCID: 0000-0001-8261-5225, Alquiza, P. J., Jones, P. R. , Wilson, I., Bi, W., Sim, D. A. & Crabb, D. P.view all authors (2020). Tablet-based tests of everyday visual function in a diabetic macular edema (DME) clinic waiting area: A feasibility study. In: Investigative Ophthalmology & Visual Science (IOVS). ARVO Annual Meeting 2020, 3 - 7 May 2020, Baltimore, USA.

Taylor, D. J. ORCID: 0000-0001-8261-5225, Jones, P. R., Smith, N. D. , Binns, A. M. ORCID: 0000-0001-8621-498X & Crabb, D. P. ORCID: 0000-0001-8754-3902view all authors (2018). Measuring real-time anxiety during simulated mobility scenarios in people with non-neovascular age-related macular degeneration (AMD). Paper presented at the ARVO 2018, 3 May - 29 Apr 2018, Honolulu, Hawaii.