Article

Parker, M. ORCID: 0000-0002-2600-2659, Barlow, S. ORCID: 0000-0002-2737-8287, Hoe, J. ORCID: 0000-0003-4647-8950 & Aitken, L. M. ORCID: 0000-0001-5722-9090view all authors (2022). The Bubble of Normalisation: A Qualitative Study of Carers of People With Dementia Who Do Not Seek Help for a Diagnosis. Journal of Geriatric Psychiatry and Neurology, 35(5), pp. 717-732. doi: 10.1177/08919887211060018

Hoe, J. ORCID: 0000-0003-4647-8950, Trickey, A. & Mcgraw, C. ORCID: 0000-0001-6661-9808 (2022). Caring for people living with dementia in their own homes: A qualitative study exploring the role and experiences of registered nurses within a district nursing service in the UK. International Journal of Older People Nursing, e12491. doi: 10.1111/opn.12491

Sacre, M., Albert, R. & Hoe, J. ORCID: 0000-0003-4647-8950 (2022). What are the experiences and the perceptions of service users attending Emergency Department for a mental health crisis? A systematic review. International Journal of Mental Health Nursing, 31(2), pp. 400-423. doi: 10.1111/inm.12968

Coleston-Shields, D. M., Challis, D., Worden, A. , Broome, E., Dening, T., Guo, B., Hoe, J. ORCID: 0000-0003-4647-8950, Lloyd-Evans, B., Moniz-Cook, E., Morris, S., Poland, F., Prothero, D. & Orrell, M.view all authors (2022). Achieving Quality and Effectiveness in Dementia Using Crisis Teams (AQUEDUCT): A Study Protocol for a Randomised Controlled Trial of a Resource Kit. Trials, 23, 54. doi: 10.1186/s13063-021-05995-y

Burton, A., Rapaport, P., Palomo, M. , Lord, K., Budgett, J., Barber, J., Hunter, R., Butler, L., Vickerstaff, J., Rockwood, K., Ogden, M., Smith, D., Lang, I., Livingston, G., Dow, B., Kales, H., Manthorpe, J., Walters, K., Hoe, J. ORCID: 0000-0003-4647-8950, Orgeta, V., Samus, Q., Cooper, C. & NIDUS Study Team, view all authors (2021). Clinical and cost-effectiveness of a New psychosocial intervention to support Independence in Dementia (NIDUS-family) for family carers and people living with dementia in their own homes: a randomised controlled trial. Trials, 22(1), 865. doi: 10.1186/s13063-021-05851-z

Stanyon, M., Streater, A., Coleston-Shields, D. M. , Yates, J., Challis, D., Dening, T., Hoe, J. ORCID: 0000-0003-4647-8950, Lloyd-Evans, B., Mitchell, S., Moniz-Cook, E., Poland, F., Prothero, D. & Orrell, M.view all authors (2021). Development of an Evidence-Based Best Practice Model for Teams Managing Crisis in Dementia: Protocol for a Qualitative Study. JMIR Research Protocols, 10(1), e14781. doi: 10.2196/14781

Tobis, S., Jaracz, K., Kropińska, S. , Talarska, D., Hoe, J. ORCID: 0000-0003-4647-8950, Wieczorowska-Tobis, K. & Suwalska, A.view all authors (2021). Needs of older persons living in long-term care institutions: on the usefulness of cluster approach. BMC Geriatrics, 21(1), 316. doi: 10.1186/s12877-021-02259-x

Parker, M. ORCID: 0000-0002-2600-2659, Barlow, S. ORCID: 0000-0002-2737-8287, Hoe, J. ORCID: 0000-0003-4647-8950 & Aitken, L. M. ORCID: 0000-0001-5722-9090view all authors (2020). Persistent barriers and facilitators to seeking help for a dementia diagnosis: a systematic review of 30 years of the perspectives of carers and people with dementia. International Psychogeriatrics, 32(5), pp. 611-634. doi: 10.1017/s1041610219002229

Livingston, G., Manela, M., O'Keeffe, A. , Rapaport, P., Cooper, C., Knapp, M., King, D., Romeo, R., Walker, Z., Hoe, J. ORCID: 0000-0003-4647-8950, Mummery, C. & Barber, J.view all authors (2020). Clinical effectiveness of the START (STrAtegies for RelaTives) psychological intervention for family carers and the effects on the cost of care for people with dementia: 6-year follow-up of a randomised controlled trial. The British Journal of Psychiatry, 216(1), pp. 35-42. doi: 10.1192/bjp.2019.160

Yates, J., Stanyon, M., Challis, D. , Coleston-Shields, D. M., Dening, T., Hoe, J. ORCID: 0000-0003-4647-8950, Jawahar, K., Lloyd-Evans, B., Moniz-Cook, E., Poland, F., Streater, A., Trigg, E. & Orrell, M.view all authors (2020). Developing a model of best practice for teams managing crisis in people with dementia: a consensus approach. BMC Psychiatry, 20(1), 505. doi: 10.1186/s12888-020-02899-0

Robertson, S., Cooper, C., Hoe, J. ORCID: 0000-0003-4647-8950 , Lord, K., Rapaport, P. & Livingston, G.view all authors (2019). Why do staff and family think differently about quality of life in dementia? A qualitative study exploring perspectives in care homes. International Journal of Geriatric Psychiatry, doi: 10.1002/gps.5193

Robertson, S., Cooper, C., Hoe, J. ORCID: 0000-0003-4647-8950 , Lord, K., Rapaport, P., Marston, L., Cousins, S., Lyketsos, C. G. & Livingston, G.view all authors (2019). Comparing proxy rated quality of life of people living with dementia in care homes. Psychological Medicine, doi: 10.1017/s0033291718003987

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Orrell, M., Hoe, J. ORCID: 0000-0003-4647-8950, Charlesworth, G. , Russell, I., Challis, D., Moniz-Cook, E., Knapp, M., Woods, B., Hoare, Z., Aguirre, S., Toot, S., Streater, A., Crellin, N., Whittaker, C., D'Amico, F. & Rehill, A.view all authors (2017). Support at Home: Interventions to Enhance Life in Dementia (SHIELD) – evidence, development and evaluation of complex interventions. Programme Grants for Applied Research, 5(5), doi: 10.3310/pgfar05050

Hoe, J., Jesnick, L., Turner, R. , Leavey, G. & Livingston, G.view all authors (2017). Caring for relatives with agitation at home: a qualitative study of positive coping strategies. British Journal of Psychiatry Open, 3(1), pp. 34-40. doi: 10.1192/bjpo.bp.116.004069

Robertson, S., Cooper, C., Hoe, J. , Hamilton, O., Stringer, A. & Livingston, G.view all authors (2017). Proxy rated quality of life of care home residents with dementia: a systematic review. International Psychogeriatrics, doi: 10.1017/S1041610216002167

Charlesworth, G., Burnell, K., Crellin, N. , Hoare, Z., Hoe, J., Knapp, M., Russell, I., Wenborn, J., Woods, B. & Orrell, M.view all authors (2016). Peer support and reminiscence therapy for people with dementia and their family carers: a factorial pragmatic randomised trial. Journal of Neurology, Neurosurgery & Psychiatry, 87(11), pp. 1218-1228. doi: 10.1136/jnnp-2016-313736

Ledgerd, R., Hoe, J., Hoare, Z. , Devine, M., Toot, S., Challis, D. & Orrell, M.view all authors (2016). Identifying the causes, prevention and management of crises in dementia. An online survey of stakeholders. International Journal of Geriatric Psychiatry, 31(6), pp. 638-647. doi: 10.1002/gps.4371

Burnell, K., Charlesworth, G., Feast, A. R. , Hoe, J. ORCID: 0000-0003-4647-8950, Poland, F. & Orrell, M.view all authors (2016). Peer support interventions for family carers of adults with chronic mental or physical illness who are living at home. Cochrane Database of Systematic Reviews, 2016(5), CD010231. doi: 10.1002/14651858.CD010231.pub2

Spector, A., Charlesworth, G., King, M. , Lattimer, M., Sadek, S., Marston, L., Rehill, A., Hoe, J., Qazi, A., Knapp, M. & Orrell, M.view all authors (2015). Cognitive-behavioural therapy for anxiety in dementia: pilot randomised controlled trial. The British Journal of Psychiatry, 206(6), pp. 509-516. doi: 10.1192/bjp.bp.113.140087

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D'Amico, F., Rehill, A., Knapp, M. , Aguirre, E., Donovan, H., Hoare, Z., Hoe, J., Russell, I., Spector, A., Streater, A., Whitaker, C., Woods, R.T. & Orrell, M.view all authors (2015). Maintenance Cognitive Stimulation Therapy: An Economic Evaluation Within a Randomized Controlled Trial. Journal of the American Medical Directors Association, 16(1), pp. 63-70. doi: 10.1016/j.jamda.2014.10.020

Livingston, G., Barber, J., Rapaport, P. , Knapp, M., Griffin, M., King, D., Romeo, R., Livingston, D., Mummery, C., Walker, Z., Hoe, J. & Cooper, C.view all authors (2014). Long-term clinical and cost-effectiveness of psychological intervention for family carers of people with dementia: a single-blind, randomised, controlled trial. The Lancet Psychiatry, 1(7), pp. 539-548. doi: 10.1016/S2215-0366(14)00073-X

Livingston, G., Barber, J., Rapaport, P. , Knapp, M., Griffin, M., Romeo, R., King, D., Livingston, D., Lewis-Holmes, E., Mummery, C., Walker, Z., Hoe, J. & Cooper, C.view all authors (2014). START (STrAtegies for RelaTives) study: a pragmatic randomised controlled trial to determine the clinical effectiveness and cost-effectiveness of a manual-based coping strategy programme in promoting the mental health of carers of people with dementia. Health Technology Assessment, 18(61), doi: 10.3310/hta18610

Orrell, M., Aguirre, E., Spector, A. , Hoare, Z., Woods, R.T., Streater, A., Donovan, H., Hoe, J., Knapp, M., Whitaker, C. & Russell, I.view all authors (2014). Maintenance cognitive stimulation therapy for dementia: single-blind, multicentre, pragmatic randomised controlled trial. The British Journal of Psychiatry, 204(6), doi: 10.1192/bjp.bp.113.137414

Hoe, J., Cooper, C. & Livingston, G. (2013). An overview of the LASER-AD study: A longitudinal epidemiological study of people with Alzheimer's disease. International Review of Psychiatry, 25(6), pp. 659-672. doi: 10.3109/09540261.2013.838152

Livingston, G., Barber, J., Rapaport, P. , Knapp, M., Griffin, M., King, D., Livingston, D., Mummery, C., Walker, Z., Hoe, J., Sampson, E.L. & Cooper, C.view all authors (2013). Clinical effectiveness of a manual based coping strategy programme (START, STrAtegies for RelaTives) in promoting the mental health of carers of family members with dementia: pragmatic randomised controlled trial. British Medical Journal (BMJ), 347, doi: 10.1136/bmj.f6276

Knapp, M., King, D., Romeo, R. , Schehl, B., Barber, J., Griffin, M., Rapaport, P., Livingston, D., Mummery, C., Walker, Z., Hoe, J., Sampson, E.L., Cooper, C. & Livingston, G.view all authors (2013). Cost effectiveness of a manual based coping strategy programme in promoting the mental health of family carers of people with dementia (the START (STrAtegies for RelaTives) study): a pragmatic randomised controlled trial. British Medical Journal (BMJ), 347, doi: 10.1136/bmj.f6342

Charlesworth, G., Burnell, K., Hoe, J. , Orrell, M. & Russell, I.view all authors (2013). Acceptance checklist for clinical effectiveness pilot trials: a systematic approach. BMC Medical Research Methodology, 13, doi: 10.1186/1471-2288-13-78

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Toot, S., Hoe, J., Ledgerd, R. , Burnell, K., Devine, M. & Orrell, M.view all authors (2013). Causes of crises and appropriate interventions: the views of people with dementia, carers and healthcare professionals. Aging Ment Health, 17(3), pp. 328-335. doi: 10.1080/13607863.2012.732037

Spector, A., Orrell, M., Lattimer, M. , Hoe, J., King, M., Harwood, K., Qazi, A. & Charlesworth, G.view all authors (2012). Cognitive behavioural therapy (CBT) for anxiety in people with dementia: study protocol for a randomised controlled trial. Trials, 13, doi: 10.1186/1745-6215-13-197

Streater, A., Spector, A., Aguirre, E. , Hoe, J., Hoare, Z., Woods, R., Russell, I. & Orrell, M.view all authors (2012). Maintenance Cognitive Stimulation Therapy (CST) in practice: study protocol for a randomized controlled trial. Trials, 13, doi: 10.1186/1745-6215-13-91

Charlesworth, G., Burnell, K., Beecham, J. , Hoare, Z., Hoe, J., Wenborn, J., Knapp, M., Russell, I., Woods, B. & Orrell, M.view all authors (2011). Peer support for family carers of people with dementia, alone or in combination with group reminiscence in a factorial design: study protocol for a randomised controlled trial. Trials, 12, doi: 10.1186/1745-6215-12-205

Aguirre, E., Spector, A., Hoe, J. , Streater, A., Woods, B., Russell, I. & Orrell, M.view all authors (2011). Development of an Evidence-based Extended Programme of Maintenance Cognitive Stimulation Therapy (CST) for People with Dementia. Non-pharmacological Therapies in Dementia, 1(3), pp. 197-216.

Aguirre, E., Spector, A., Hoe, J. , Russell, IT, Knapp, M., Woods, RT & Orrell, M.view all authors (2010). Maintenance Cognitive Stimulation Therapy (CST) for dementia: a single-blind, multi-centre, randomized controlled trial of Maintenance CST vs. CST for dementia. Trials, 11, doi: 10.1186/1745-6215-11-46

Book Section

Ashaye, K., Jayalath, D. & Hoe, J. ORCID: 0000-0003-4647-8950 (2021). An Introduction to Needs Assessment and Use of the Camberwell Assessment of Need for the Elderly. In: Hoe, J. ORCID: 0000-0003-4647-8950 & Orrell, M. (Eds.), Camberwell Assessment of Need for the Elderly: CANE. (pp. 1-9). Cambridge, UK: Cambridge University Press & RCPsych Publications. doi: 10.1017/9781911623373.001

Hoe, J., Orrell, M. & Livingston, G. (2010). Quality of life measures in old age. In: Abou Saleh, M., Anand, K. & Katona, C. (Eds.), Principles and Practice of Geriatric Psychiatry. (pp. 183-192). Wiley Blackwell.