Autism diagnosis in the United Kingdom: Perspectives of autistic adults, parents and professionals

Crane, L., Batty, R., Adeyinka, H., Goddard, L., Henry, L. & Hill, E. L. (2018). Autism diagnosis in the United Kingdom: Perspectives of autistic adults, parents and professionals. Journal of Autism and Developmental Disorders,

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Accessing an autism diagnosis is a key milestone, both for an individual and their family. Using a qualitative methodology, the current study examined the views and experiences of ten autistic adults, ten parents of children on the autism spectrum, and ten professionals involved in autism diagnosis, all based in the United Kingdom (UK). Interviewing these 30 respondents about the diagnostic process and subsequent support options, the goal was to identify aspects of the diagnostic process that are working well, and areas in which improvements are needed. Using thematic analysis, three key themes were identified: the process of understanding and accepting autism; multiple barriers to satisfaction with the diagnostic process; and inadequate post-diagnostic support provision.

Publication Type: Article
Additional Information: This is a post-peer-review, pre-copyedit version of an article published in Journal of Autism and Developmental Disorders. The final authenticated version is available online at:
Publisher Keywords: Autism; Diagnosis; Support; Adults; Parents; Professionals
Subjects: R Medicine > RC Internal medicine
Departments: School of Health Sciences > Department of Language & Communication Science

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