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Cultivating participatory processes in self‐harm app development: A case‐study and working methodology

Babbage, C. M. ORCID: 0000-0002-6337-3352, Lockwood, J., Roberts, L. , Mendes, J., Greenhalgh, C., Willingham, L., Wokomah, E., Woodcock, R., Slovak, P. ORCID: 0000-0001-8458-7715, Townsend, E. ORCID: 0000-0002-4677-5958, Digital Youth research team & Lucassen, M. ORCID: 0000-0001-6958-3468 (2024). Cultivating participatory processes in self‐harm app development: A case‐study and working methodology. JCPP Advances, 4(4), article number e12295. doi: 10.1002/jcv2.12295

Abstract

Background

Self‐harm and suicide related behaviours are increasing in young people, and clinical support is not adequately meeting needs. Improved approaches to assessment and the clinical management of self‐harm will result from codesign processes and include greater shared decision‐making between young people and practitioners. The CaTS‐App (an adapted digital version of the existing Card‐Sort Task for Self‐harm research tool) aims to facilitate a collaborative understanding of adolescent self‐harm and support decision‐making within clinical settings. The codevelopment of a digital, clinical tool which meets the needs of multiple stakeholders requires careful consideration.

Methods

We present a case‐study describing the participatory aspects of the development of the CaTS‐App, which included comprehensive patient involvement, research activities and coproduction with diverse young people aged 17–24 with lived experience of self‐harm. We share our processes and activities to deliver safe, engaging, sustainable, ethical and responsible participatory practice and co‐created knowledge, in the codevelopment of the CaTS‐App.

Results

Activities spanned a 48‐month period in both face‐to‐face and online settings. Example processes and activities are provided in narrative, tabular and diagrammatic form, alongside discussion of the rationale for choices made. A summary methodology is also shared to stimulate continued discussion and development of participatory approaches in digital mental health.

Conclusions

The paper contributes important insight and practical detail for the delivery of genuine participatory processes in digital mental health development when working with a population who may be considered vulnerable.

Publication Type: Article
Additional Information: © 2024 The Author(s). JCPP Advances published by John Wiley & Sons Ltd on behalf of Association for Child and Adolescent Mental Health. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
Publisher Keywords: card-sort task for self-harm, coproduction, digital interventions, PPI, self-harm, young people
Subjects: B Philosophy. Psychology. Religion > BF Psychology
H Social Sciences > HN Social history and conditions. Social problems. Social reform
R Medicine > RC Internal medicine
R Medicine > RC Internal medicine > RC0321 Neuroscience. Biological psychiatry. Neuropsychiatry
R Medicine > RJ Pediatrics > RJ101 Child Health. Child health services
Departments: School of Health & Medical Sciences
School of Health & Medical Sciences > Nursing
SWORD Depositor:
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