Article

Bragstad, L. K., Hjelle, E. G., Zucknick, M., Sveen, U., Thommessen, B., Bronken, B. A., Martinsen, R., Kitzmüller, G., Mangset, M., Kvigne, K. J., Hilari, K. ORCID: 0000-0003-2091-4849, Lightbody, C. E. and Kirkevold, M. (2020). The effects of a dialogue-based intervention to promote psychosocial well-being after stroke: a randomized controlled trial. Clinical Rehabilitation, doi: 10.1177/0269215520929737

Behn, N. ORCID: 0000-0001-9356-9957, Francis, J., Togher, L., Hatch, E., Moss, B. and Hilari, K. (2020). Description and effectiveness of communication partner training in TBI: A systematic review. Journal of Head Trauma Rehabilitation,

Lee, M. T., Govender, R., Roy, P. J., Vaz, F. and Hilari, K. ORCID: 0000-0003-2091-4849 (2020). Factors affecting swallowing outcomes after total laryngectomy: Participant self-report using the swallowing outcomes after laryngectomy questionnaire. Head Neck, doi: 10.1002/hed.26132

Brady, M. C., Ali, M., VandenBerg, K., Williams, L. J., Williams, L. R. ORCID: 0000-0003-2430-1142, Abo, M., Becker, F., Bowen, A., Brandenburg, C., Breitenstein, C., Bruehl, S., Copland, D., Cranfill, T. B., de Pietro-Bachmann, M., Enderby, P., Fillingham, J., Galli, F., Gandolfi, M., Glize, B., Godecke, E., Hawkins, N., Hilari, K. ORCID: 0000-0003-2091-4849, Hinckley, J., Horton, S., Howard, D., Jaecks, P., Jefferies, E., Jesus, L.M.T., Kambanaros, M., Laganaro, M., Lambon Ralph, M. A., Laska, A., Leemann, B., Leff, A.P., Lima, R., Lorenz, A., MacWhinney, B., Shisler Marshall, R., Mattioli, F., Mavis, I., Meinzer, M., Nilipour, R., Noe, E., Paik, N-J., Palmer, R., Papathanasiou, I., Patrício, B., Pavao Martins, I., Price, C. J., Prizl Jakovac, T., Rochon, E., Rose, M., Rosso, C., Rubi-Fessen, I., Ruiter, M. B., Snell, C., Stahl, B., Szaflarski, J., Thomas, S., van de Sandt-Koenderman, M., van der Meulen, I., Visch-Brink, E., Worrall, L. and Harris Wright, H. (2019). RELEASE: A protocol for a systematic review based, individual participant data, meta- and network meta-analysis, of complex speech-language therapy interventions for stroke-related aphasia. Aphasiology, doi: 10.1080/02687038.2019.1643003

Northcott, S. ORCID: 0000-0001-8229-5452, Simpson, A. ORCID: 0000-0003-3286-9846, Thomas, S., Hirani, S. P. ORCID: 0000-0002-1577-8806, Flood, C. ORCID: 0000-0001-5170-7792 and Hilari, K. ORCID: 0000-0002-1577-8806 (2019). SOlution Focused brief therapy In post-stroke Aphasia (SOFIA Trial): protocol for a feasibility randomised controlled trial. AMRC Open Research, doi: 10.12688/amrcopenres.12873.2

Hilari, K. ORCID: 0000-0003-2091-4849, Behn, N. ORCID: 0000-0001-9356-9957, Marshall, J. ORCID: 0000-0002-6589-221X, Simpson, A., Thomas, S., Flood, C., Northcott, S. ORCID: 0000-0001-8229-5452, Goldsmith, K. and McVicker, S. (2019). Adjustment Post-Stroke and Aphasia: Protocol for the SUpporting Well-Being Through PEeR-Befriending (SUPERB Trial). Brain Injury, 33(Sup 1), p. 167. doi: 10.1080/02699052.2019.1608749

Behn, N. ORCID: 0000-0001-9356-9957, Hilari, K. ORCID: 0000-0003-2091-4849, Marshall, J. ORCID: 0000-0002-6589-221X, Simpson, A. ORCID: 0000-0003-3286-9846, Northcott, S. ORCID: 0000-0001-8229-5452, Thomas, S., Flood, C., Goldsmith, K. and McVicker, S. (2019). SUpporting Wellbeing Through PEeR-Befriending (SUPERB) Trial: An Exploration of Fidelity in Peer-Befriending for People with Aphasia. Brain Injury, 33(Sup 1), pp. 303-304. doi: 10.1080/02699052.2019.1608749

Efstratiadou, E. A., Papathanasiou, I., Holland, R., Varlokosta, S. and Hilari, K. ORCID: 0000-0003-2091-4849 (2019). Efficacy of Elaborated Semantic Features Analysis in Aphasia: a quasi-randomised controlled trial. Aphasiology, doi: 10.1080/02687038.2019.1571558

Hilari, K. ORCID: 0000-0003-2091-4849, Behn, N., Marshall, J., Simpson, A., Thomas, S., Northcott, S., Flood, C. ORCID: 0000-0001-5170-7792, McVicker, S., Jofre-Bonet, M., Moss, B., James, K. and Goldsmith, K. (2019). Adjustment with aphasia after stroke: study protocol for a pilot feasibility randomised controlled trial for SUpporting wellbeing through PEeR Befriending (SUPERB). Pilot and Feasibility Studies, 5, 14.. doi: 10.1186/s40814-019-0397-6

Bharal, M., Morgan, S. ORCID: 0000-0002-7573-4290, Husain, T., Hilari, K. ORCID: 0000-0003-2091-4849, Proctor, C., Harrison, K. ORCID: 0000-0003-0271-5272, Bassett, P. and Culkin, A. (2019). Volume Based Feeding Versus Rate Based Feeding in the Critically Ill: A UK Study. Journal of the Intensive Care Society, doi: 10.1177/1751143719847321

Northcott, S. ORCID: 0000-0001-8229-5452, Thomas, S., Simpson, A., Burns, K., Hirani, S. P. ORCID: 0000-0002-1577-8806, Moss, B. and Hilari, K. ORCID: 0000-0003-2091-4849 (2018). How acceptable is solution focused brief therapy (SFBT) to people with severe aphasia?. International Journal of Stroke, 3(Suppl), p. 20.

Pritchard, M. ORCID: 0000-0002-1777-9095, Hilari, K. ORCID: 0000-0003-2091-4849, Cocks, N. and Dipper, L. ORCID: 0000-0002-5918-3898 (2018). Psychometric properties of discourse measures in aphasia: acceptability, reliability, and validity. International Journal of Language & Communication Disorders, 53(6), pp. 1078-1093. doi: 10.1111/1460-6984.12420

Hilari, K. ORCID: 0000-0003-2091-4849, Galante, L., Huck, Anneline, Pritchard, M. ORCID: 0000-0002-1777-9095, Allen, L. and Dipper, L. ORCID: 0000-0002-5918-3898 (2018). Cultural adaptation and psychometric testing of The Scenario Test UK for people with aphasia. International Journal of Language & Communication Disorders, doi: 10.1111/1460-6984.12379

Northcott, S., Simpson, A., Moss, B., Ahmed, N. and Hilari, K. (2018). Supporting people with aphasia to ‘settle into a new way to be’: speech and language therapists’ views on providing psychosocial support. International Journal of Language and Communication Disorders, 53(1), pp. 16-29. doi: 10.1111/1460-6984.12323

Hilari, K. ORCID: 0000-0003-2091-4849, Behn, N. ORCID: 0000-0001-9356-9957, Marshall, J. ORCID: 0000-0002-6589-221X, Simpson, A., Northcott, S. ORCID: 0000-0001-8229-5452, Thomas, S., Flood, C. ORCID: 0000-0001-5170-7792, Goldsmith, K. and McVicker, S. (2018). Blinding participants and assessors in a feasibility randomised controlled trial of peer-befriending for people with aphasia post-stroke. Aphasiology, 32(Sup1), pp. 88-89. doi: 10.1080/02687038.2018.1489121

Behn, N. ORCID: 0000-0001-9356-9957, Hilari, K. ORCID: 0000-0003-2091-4849, Marshall, J. ORCID: 0000-0002-6589-221X, Simpson, A., Northcott, S. ORCID: 0000-0001-8229-5452, Thomas, S., Flood, C. ORCID: 0000-0001-5170-7792, Goldsmith, K. and McVicker, S. (2018). SUpporting well-being through PEeR-Befriending (SUPERB) trial: an exploration of fidelity in peer-befriending for people with aphasia. Aphasiology, 32(Sup1), pp. 21-23. doi: 10.1080/02687038.2018.1489120

Efstratiadou, E. A., Papathanasiou, I., Holland, R., Archonti, A. and Hilari, K. ORCID: 0000-0003-2091-4849 (2018). A Systematic Review of Semantic Feature Analysis Therapy Studies for Aphasia. Journal of Speech, Language, and Hearing Research, 61, pp. 1261-1278. doi: 10.1044/2018_JSLHR-L-16-0330

Wallace, S. J., Worrall, L., Rose, T., Le Dorze, G., Breitenstein, C., Hilari, K. ORCID: 0000-0003-2091-4849, Babbitt, E., Bose, A., Brady, M., Cherney, L. R., Copland, D., Cruice, M. ORCID: 0000-0001-7344-2262, Enderby, P., Hersh, D., Howe, T., Kelly, H., Kiran, S., Laska, A-C., Marshall, J. ORCID: 0000-0002-6589-221X, NIcholas, M., Patterson, J., Pearl, G., Rochon, E., Rose, M, Sage, K., Small, S. and Webster, J. (2018). A core outcome set for aphasia treatment research: the ROMA consensus statement. International Journal of Stroke, 14(2), pp. 180-185. doi: 10.1177/1747493018806200

Pritchard, M., Hilari, K., Cocks, N. and Dipper, L. (2017). Reviewing the Quality of Discourse Information Measures in Aphasia. International Journal of Language and Communication Disorders, 52(6), pp. 689-732. doi: 10.1111/1460-6984.12318

Northcott, S. and Hilari, K. (2017). “I’ve got somebody there, someone cares”: what support is most valued following a stroke?. Disability and Rehabilitation, doi: 10.1080/09638288.2017.1337242

Northcott, S., Hirani, S. P. and Hilari, K. (2017). A typology to explain changing social networks post stroke. Gerontologist, doi: 10.1093/geront/gnx011

Kladouchou, V., Papathanasiou, I., Efstratiadou, E. A., Christaki, V. and Hilari, K. (2017). Treatment integrity of elaborated semantic feature analysis aphasia therapydelivered in individual and group settings. International Journal of Language and Communication Disorders, doi: 10.1111/1460-6984.12311

Northcott, S., Simpson, A., Moss, B., Ahmed, N. and Hilari, K. (2017). How do Speech and Language Therapists address the psychosocial well-being of people with aphasia? Results of a UK on-line survey. International Journal of Language and Communication Disorders, 52(3), pp. 356-373. doi: 10.1111/1460-6984.12278

McKean, C., Bloch, S., Hilari, K. and Botting, N. (2016). Editorial. International Journal of Language and Communication Disorders, 52(4), 391.. doi: 10.1111/1460-6984.12304

Williams, L., Ali, M., VandenBerg, K., Godwin, J., Elders, A., Becker, F., Bowen, A., Breitenstein, C., Gandolfi, M., Godecke, E., Hilari, K. ORCID: 0000-0003-2091-4849, Hinckley, J., Horton, S., Howard, D., Jesus, L.M.T., Jungblut, M., Kambanaros, M., Kukkonen, T., Laska, A., MacWhinney, B., Martins, I., Mattioli, F., Meinzer, M., Palmer, R., Patrício, B., Price, C., Smania, N., Szaflarski, J., Thomas, S., Visch-Brink, E., Worrall, L. and Brady, M. C. (2016). Creating an international, multidisciplinary, aphasia dataset of individual patient data (IPD) for the REhabilitation and recovery of peopLE with Aphasia after StrokE (RELEASE) project. International Journal of Stroke, 11(4), S50. doi: 10.1177/1747493016669275

Marshall, J., Booth, T., Devane, N., Galliers, J. R., Greenwood, H., Hilari, K., Talbot, R., Wilson, S. and Woolf, C. (2016). Evaluating the Benefits of Aphasia Intervention Delivered in Virtual Reality: Results of a Quasi-Randomised Study. PLoS One, 11(8), e01603. doi: 10.1371/journal.pone.0160381

Northcott, S., Moss, B, Harrison, K. and Hilari, K. (2016). A systematic review of the impact of stroke on social support and social networks: associated factors and patterns of change. Clinical Rehabilitation, 30(8), pp. 811-831. doi: 10.1177/0269215515602136

Northcott, S., Marshall, J. and Hilari, K. (2016). What factors predict who will have a strong social network following a stroke?. Journal of Speech Language and Hearing Research, doi: 10.1044/2016_JSLHR-L-15-0201

van Ewijk, L., Versteegde, L., Raven-Takken, E. and Hilari, K. (2016). Measuring quality of life in Dutch people with aphasia: development and psychometric evaluation of the SAQOL-39NL. Aphasiology, doi: 10.1080/02687038.2016.1168919

Govender, R., Lee, M. T., Drinnan, M., Twinn, C., Davies, T. and Hilari, K. (2016). Psychometric Evaluation of the Swallowing Outcomes after Laryngectomy (SOAL) Patient-reported Questionnaire. Head and Neck, 38(S1), E1639-E1645. doi: 10.1002/hed.24291

Northcott, S., Burns, K., Simpson, A. and Hilari, K. (2016). “Living with aphasia the best way I can”: a feasibility study exploring solution focused brief therapy for people with aphasia. Folia Phoniatrica Logopedica, 67(3), pp. 156-167. doi: 10.1159/000439217

Hilari, K., Cruice, M., Sorin-Peters, R. and Worrall, L. (2016). Quality of life in aphasia: State of the art. Folia Phoniatrica Logopedica, 67(3), pp. 114-118. doi: 10.1159/000440997

Hilari, K. and Northcott, S. (2016). “Struggling to stay connected”: comparing the social relationships of healthy older people and people with stroke and aphasia. Aphasiology, 31(6), pp. 674-687. doi: 10.1080/02687038.2016.1218436

Harding, C., Frank, L., Botting, N. and Hilari, K. (2015). Assessment and management of infant feeding. Infant, 11(3), pp. 85-89.

Hilari, K., Klippi, A., Constantinidou, F., Horton, S., Penn, C., Raymer, A., Wallace, S., Zemva, N. and Worrall, L. (2015). An International Perspective on Quality of Life in Aphasia: A Survey of Clinician Views and Practices from Sixteen Countries.. Folia Phoniatrica et Logopaedica, 67(3), pp. 119-130. doi: 10.1159/000434748

Hilari, K., Klippi, A., Constantinidou, F., Horton, S., Penn, C., Raymer, S., Wallace, S., Zemva, N. and Worrall, L. (2015). An international perspective. A survey of clinician views and practices from 16 countries. Folia Phoniatrica Logopedica, 67(3), pp. 119-130. doi: 10.1159/000434748

Fotiadou, D., Northcott, S., Chatzidaki, A. and Hilari, K. (2014). Aphasia blog talk: How does stroke and aphasia affect a person’s social relationships?. Aphasiology, doi: 10.1080/02687038.2014.928664

Winkler, M., Bedford, V., Northcott, S. and Hilari, K. (2014). Aphasia blog talk: How does stroke and aphasia affect the carer and their relationship with the person with aphasia?. Aphasiology, doi: 10.1080/02687038.2014.928665

Harding, C., Frank, L., Van Someren, V., Hilari, K. and Botting, N. (2014). How does non-nutritive sucking support infant feeding?. Infant Behavior and Development, 37(4), pp. 457-464. doi: 10.1016/j.infbeh.2014.05.002

Northcott, S. and Hilari, K. (2013). Stroke Social Network Scale: development and psychometric evaluation of a new patient-reported measure. Clinical Rehabilitation, 27(9), pp. 823-833. doi: 10.1177/0269215513479388

Hilari, K. and Boreham, L. D. (2013). Visual analogue scales in stroke: what can they tell us about health-related quality of life?. BMJ Open, 3(9), doi: 10.1136/bmjopen-2013-003309

Caute, A., Northcott, S., Clarkson, L., Pring, T. and Hilari, K. (2012). Does mode of administration affect health-related quality-of-life outcomes after stroke?. International Journal of Speech-Language Pathology, 14(4), pp. 329-337. doi: 10.3109/17549507.2012.663789

Efstratiadou, E. A., Chelas, E. N., Ignatiou, M., Christaki, V., Papathanasiou, I. and Hilari, K. (2012). Quality of life after stroke: Evaluation of the Greek SAQOL-39g. Folia Phoniatrica et Logopaedica, 64(4), pp. 179-186. doi: 10.1159/000340014

Ignatiou, M., Christaki, V., Chelas, E. N., Efstratiadou, E. A. and Hilari, K. (2012). Agreement between people with aphasia and their proxies on health-related quality of life after stroke, using the Greek SAQOL-39g. Psychology, 3(9), pp. 686-690. doi: 10.4236/psych.2012.39104

Hilari, K. ORCID: 0000-0003-2091-4849, Needle, J. J. ORCID: 0000-0003-0727-1391 and Harrison, K. ORCID: 0000-0003-0271-5272 (2012). What are the important factors in health-related quality of life for people with aphasia? A systematic review. Archives of Physical Medicine and Rehabilitation, 93(1 SUPP), S86 - S95.

Northcott, S. and Hilari, K. (2011). Why do people lose their friends after a stroke?. International Journal of Language & Communication Disorders, 46(5), pp. 524-534. doi: 10.1111/j.1460-6984.2011.00079.x

Hilari, K. (2011). The impact of stroke: are people with aphasia different to those without?. Disability and Rehabilitation, 33(3), pp. 211-218. doi: 10.3109/09638288.2010.508829

Hilari, K., Wiggins, R.D., Roy, P., Byng, S. and Smith, S.C. (2010). Predictors of health-related quality of life (HRQL) in people with chronic aphasia. Aphasiology, 17(4), pp. 365-381. doi: 10.1080/02687030244000725

Hilari, K., Northcott, S., Roy, P., Marshall, J., Wiggins, R. D., Chataway, J. and Ames, D. (2010). Psychological distress after stroke and aphasia: the first six months. Clinical Rehabilitation, 24(2), pp. 181-190. doi: 10.1177/0269215509346090

Lee, M. T., Gibson, S. and Hilari, K. (2010). Gender differences in health-related quality of life following total laryngectomy. International Journal of Language & Communication Disorders, 45(3), pp. 287-294. doi: 10.3109/13682820902994218

Kerr, J., Hilari, K. and Litosseliti, L. (2010). Information needs after stroke: What to include and how to structure it on a website. A qualitative study using focus groups and card sorting. Aphasiology, 24(10), pp. 1170-1196. doi: 10.1080/02687030903383738

Hilari, K., Lamping, D. L., Smith, S. C., Northcott, S., Lamb, A. and Marshall, J. (2009). Psychometric properties of the Stroke and Aphasia Quality of Life Scale (SAQOL-39) in a generic stroke population. Clinical Rehabilitation, 23(6), pp. 544-557. doi: 10.1177/0269215508101729

Hilari, K. and Byng, S. (2009). Health-related quality of life in people with severe aphasia. International Journal of Language & Communication Disorders, 44(2), pp. 193-205. doi: 10.1080/13682820802008820

Kartsona, A. and Hilari, K. (2007). Quality of life in aphasia: Greek adaptation of the stroke and aphasia quality of life scale - 39 item (SAQOL-39). Eura Medicophys, 43(1), pp. 27-35.

Hilari, K., Owen, S. and Farrelly, S. J. (2007). Proxy and self-report agreement on the Stroke and Aphasia Quality of Life Scale-39. Journal of Neurology, Neurosurgery and Psychiatry, 78(10), pp. 1072-1075. doi: 10.1136/jnnp.2006.111476

Hilari, K. and Northcott, S. (2006). Social support in people with chronic aphasia. Aphasiology, 20(1), pp. 17-36. doi: 10.1080/02687030500279982

Hilari, K. (2005). Choosing relevant outcomes for aphasia: A commentary on Ross and Wertz, "Advancing appraisal: Aphasia and the WHO". Aphasiology, 19(9), pp. 860-900. doi: 10.1080/02687030544000038

Hilari, K., Byng, S., Lamping, D. L. and Smith, S. C. (2003). Stroke and aphasia quality of life scale-39 (SAQOL-39) - Evaluation of acceptability, reliability, and validity. Stroke, 34(8), pp. 1944-1950. doi: 10.1161/01.STR.0000081987.46660.ED

Hilari, K. and Byng, S. (2001). Measuring quality of life in people with aphasia: The Stroke Specific Quality of Life Scale. International Journal of Language & Communication Disorders, 36(2), pp. 86-91. doi: 10.3109/13682820109177864

Hilari, K., Byng, S. and Pring, T. (2001). Measuring well-being in aphasia: The GHQ-28 versus the NHP. Advances in Speech-Language Pathology, 3(2), pp. 129-137. doi: 10.3109/14417040109003719

Book Section

Hilari, K. (2011). Aphasia. In: Hilari, K. and Botting, N. (Eds.), The impact of communication disability across the lifespan. (pp. 147-160). London: J&R Press.

Hilari, K. (2011). Communication disability across the lifespan: the importance of documenting and sharing kholedge about wider impacts. In: Hilari, K. and Botting, N. (Eds.), The impact of communication disability across the lifespan. (pp. 1-5). London: J&R Press.

Marshall, J., Hilari, K., Cruice, M. and Harrison, K. (2010). Communication. In: Williams, J., Perry, L. and Watkins, C. (Eds.), Acute Stroke Nursing. (pp. 184-204). Chichester: Wiley-Blackwell. ISBN 9781405161046

Herman, R. and Morgan, G. (2010). Deafness, language & communication. In: Botting, N. and Hilari, K. (Eds.), The Impact of Communication Disability Across the Lifespan. (pp. 101-121). Guildford: J & R Press. ISBN 9781907826030

Report

Needle, J. J. ORCID: 0000-0003-0727-1391, Petchey, R. P., Benson, J., Scriven, A., Lawrenson, J. ORCID: 0000-0002-2031-6390 and Hilari, K. ORCID: 0000-0003-2091-4849 (2011). The role of allied health professionals in health promotion (Final). London: NIHR Service Delivery and Organisation programme.

Thesis

Hilari, K. (2002). Assessing health-related quality of life in people with aphasia. (Unpublished Doctoral thesis, City University London)